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Caregivers
Caring for people with ME and caring for yourself, too.
How does ME impact caregivers?
Myalgic encephalomyelitis is a complex, challenging disease for everyone involved – not least the caregiver or carer. Caring for someone with ME requires adaptibility, patience, commitment and compassion. We hope the resources below will help you better navigate the care of your loved one, your own self-care, and connect with others on a similar journey.
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View our crowdsourced, global directory of health care providers.
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Fill Out the FormMonthly Caregiver Support Call
A support call for caregivers of people with ME, Long COVID, and associated conditions.
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Browse EventsMonthly Partner Caregiver Support Call
A support call for caregivers who are spouses, partners, or significant others of people with ME, Long COVID, and associated conditions.
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#MEAction has crowdsourced advice in the guide below from caregivers who care for both adults and children. We hope they will equip you to better navigate the long, convoluted journey of this disease. You can browse for more brochures, fact sheets, and other tools below.