Connecting Black People with ME and/or long Covid in the UK

Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the aim of improving our wellbeing. 

Group members will be invited to share their skills, and to lead parts of the group if they feel able to. 

Darren says: “There is no pressure to do so though; contribute as much or as little as you are comfortable and able to.”

Darren’s diagnosis of ME took 13 years to come about after suffering from Glandular Fever at the end of 2000, at age 15, and presenting symptoms of ME in 2001.

Diagnosis was crucial for Darren in dealing with the physical and mental impacts of the condition. Getting support during COVID-19 was heavily delayed, which exacerbated his symptoms during an already difficult period.

These findings and experiences resonated and motivated him to find other Black and Black-mixed people living in the UK with ME to hear their stories around diagnosis and treatment and build a community of support for one another. 

This is especially important in this era of COVID-19 where it has been widely reported that people from minority ethnic communities have been disproportionately affected and with Long Covid patients set to add to the 250,000+ people living with ME in the UK.

Facebook
Twitter
WhatsApp
Email

Latest News

red rectangle image with the words Empowered Women Empower Women featured circling around the #MEAction logo. Around the words are polaroid photos of women. there are also white star burts through out the image.

Women’s History Month

I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far!  This final week we are focusing on our community. And I have made no secret about how

Read More »
rectangle image with the words Join the fight for medicaid & telehealth in the top left corner with a airhorn in the bottom right corner. On the sides are stripes of blue and red. the meaction logo in the bottom left hand corner.

Join the Fight for Medicaid & Telehealth

We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions. We are so grateful for the actions that you have taken with us to fight to protect Medicaid and Telehealth but we still have a long road ahead

Read More »