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![a multi-water colored image with the words, Severe ME Artists Project 2024 in white font outlined in black. the meaction action logo in the bottom right hand corner.](https://www.meaction.net/wp-content/uploads/2024/06/Severe-ME-Artists-Project-2024-1200-x-630-px-1-300x158.png)
Severe ME Artists Project 2024
Quick Overview: Submit one piece of artwork – image, writing, or video Label your artwork with your name as
![Light blue square with rainbows in the top left and bottom right corner. In the middle are the words, -Pride is Valid- No Matter How One Celebrates or Experiences It. #MEAction Board Member, Jennifer England, shares her views on Pride. The #MEAction logo in the top right corner.](https://www.meaction.net/wp-content/uploads/2024/06/Pride-Is-Valid-No-Matter-How-One-Celebrates-or-Experiences-It-1-300x158.png)
Pride Is Valid No Matter How One Celebrates or Experiences It
In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England, about what
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Questions to Ask Prospective MPs About ME/CFS
In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s
![red rectangle with the #MEAction Scotland logo on the left hand side and the words Impact Statement 2022-2023 on the right.](https://www.meaction.net/wp-content/uploads/2024/05/Copy-of-Impact-statement-page-1-image-1-300x169.jpg)
#MEAction Scotland publishes impact statement
#MEAction Scotland is pleased to publish our impact statement, which covers March 2022 to May 23. It reports on
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#TeachMETreatME: Celebrating An Impactful Campaign
We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on
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#MillionsMissing Week is Here: #TeachMETreatME in Action!
We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat
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#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024
We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health
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Interview With Lauren Saikkonen – Author of Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive
#MEAction is once again thrilled to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a
![Photo of a medium dark skinned person with curly black hair on a computer screen receiving telehealth services while a dark skinned person with hair pulled into a bun and wearing a labcoat is shown from behind offering the telehealth services. Text underneath: Sign up today for access to - free COVID/flu telehealth care and - for those who are eligible free tests. The #MEAction, Home Test To Treat, and Body politic logos are at the bottom along with the website and phone number: www.test2treat.org 1-800-682-2829](https://www.meaction.net/wp-content/uploads/2024/03/Sign-up-today-for-free-COVIDFlu-telehealth-1200-x-630-px-300x158.png)
Home Test To Treat: Access Free Home Telehealth for Flu & COVID-19 Infections
#MEAction and Body Politic* are excited to collaborate with Home Test To Treat to share their critically important resource!
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#NotJustFatigue – Community Member Launching A New Website Today!
#MEAction is excited to announce community member, Elizabeth Ansell, created a new website, #NotJustFatigue, launching today, March 1, 2024!
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#MEAction’s NIH Study Response
NIH’s recent paper on ME/CFS elicited strong reactions from the community.
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Black ME Voices: Q&A with Teona Studemire
With it being Black History Month, it was crucial to me to make sure we spotlighted someone from the
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NIH ME/CFS Research Roadmap Update–Public Comment Period Now Open
The NIH ME/CFS Research Roadmap public comment period is open now with a deadline of March 8th. #MEAction is
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Valentine’s Day Interview with Jamison Hill & Book Promotion
We are excited to bring you a special Valentine’s Day promotion of Jamison Hill’s most recent book, Something’s Wrong
![on a red sparkly rectangle image. The words "#MEAction's Volunteer Program Revamped!" are written in an arcade/game font. Sign-Up Today! The #MEAction logo in the bottom right corner](https://www.meaction.net/wp-content/uploads/2024/02/MEActions-volunteer-program-revamped-1200-x-630-px-300x158.png)
#MEAction’s Volunteer Program Revamped
Exciting news: #MEAction revamped our volunteer program for the new year! We are honored to have wonderful volunteers including
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#MEAction UK’s letter to The Telegraph, Feb 2024
In Judith Woods’ Comment piece on 2nd February 2024, ‘28-year-old Lauren Hoeve died by euthanasia – to a degree,
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#MEAction UK and Scotland update prevalence figures based on new data
Both the UK and Scotland branches of #MEAction will start using updated figures for the prevalence of ME, based
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#MEAction Writers Inspired by WGI Workshops
Last fall, #MEAction partnered with the Writers Guild Initiative (WGI) to offer writing workshops to twenty-five community members. #MEAction
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#MEAction Meets with the Office of Long COVID Research and Practice
On January 17th, 2024, #MEAction convened a constructive meeting with Dr. Ian Simon, the newly appointed director of the
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Historic Hearing on Long COVID in the Senate HELP Committee
The U.S. Senate HELP Committee held a historic hearing about Long COVID last Thursday to discuss advancing research and
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#MEAction UK’s letter to the BBC over the show Dragons’ Den
We are writing to express our deep concerns about a segment featured on an episode of Dragons’ Den, which
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Senate HELP Committee Shows Strong Support for Long COVID
The U.S. Senate HELP Committee held a hearing on Long COVID yesterday to discuss advancing research and improving patient care.
Senate HELP Committee to Hold Hearing on Long COVID
U.S. Senate HELP Committee to Hold Hearing on Long COVID The U.S. Senate Committee on Health, Education, Labor &
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Beth Mazur — Memorial Service and Obituary
As many of you know, we lost a wonderful person recently. Beth Mazur passed away after battling ME for
![Photo of Beth Mazur smiling a beautiful big smile.](https://www.meaction.net/wp-content/uploads/2023/12/Beth-Mazur-Feature-Image-300x157.jpg)
Sad News From Our Community — Content Warning
We are sharing some sad news. Please put your health first. Content warning for sharing the loss of a community member.
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Chronic Illness Survey Adventure Finishing this Month!
Two years ago, #MEAction embarked on an ambitious project, the Chronic Illness Survey Adventure! The Adventure is a survey
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CANARY CORPS – Alison’s Story
Have you registered yet to join us this Wednesday, December 6th at 4pm ET / 1pm PT for a
![A rectangle image with a blueish/purple background. The words, "A Year of Exciting Medical Education Achievements" is in white font on the left hand side with the #MEAction logo underneath. On the righthand side is an image of Jaime Seltzer with a step and repeat and poster at the SDMI conference.](https://www.meaction.net/wp-content/uploads/2023/11/A-Year-of-Exciting-Medical-Education-Achievements-300x158.png)
A Year of Exciting Medical Education Achievements
A year ago, we were proud to announce that #MEAction and Mayo Clinic Rochester had won a grant for
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#MEAction Shares Our Thanks for Your BOLD ACTIONS
During this time of thankfulness and gratitude, #MEAction staff wants to share what BOLD ACTIONS we are thankful our
![red rectangle. on the left side of the rectangle an image of a desktop computer that features the mepedia home page. the words "Live Now!" are stacked four times and fall behind the desktop image. on the right side of the rectangle, the words " check out the updated, expanded, and revamped mepedia! then there is the #mepedia logo with the words a project of #MEAction at the bottom.](https://www.meaction.net/wp-content/uploads/2023/11/MEpedia-1200-x-630-px-300x158.png)
Check out the Updated, Expanded, Revamped MEpedia!
Great news! About six months ago, we began a project to update, expand, and revamp MEpedia. Due to a generous grant,
![Graphic of yellow canary over black and white photo of a coal mine. Text reads "Canary Corps"](https://www.meaction.net/wp-content/uploads/2023/11/Canary-Corps-Social-Preview-Image-Website-300x157.png)
CANARY CORPS – New Grassroots Program Coming Soon
I’ve got exciting news to share! In early 2024, #MEAction will launch a new grassroots, peer-run program in the
![red/orange rectangle image with the words: Apply for 2023 appear in a gray round bubble that lays atop a white box that says NIH Conference Travel Scholarship. Under the box, the words new travel scholarship for providers and medical students to the (NIH) Conference: Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, December 12- 13, 2023 Bethesda, MD appear. The #MEAction logo is on the left hand side of the image](https://www.meaction.net/wp-content/uploads/2023/10/2023-NIH-Travel-Scholarship-Square-1280-x-720-px-300x169.png)
Announcing: New NIH Conference Travel Scholarship for Providers and Medical Students!
#MEAction is thrilled to announce a new travel scholarship for providers and medical students to the National Institutes of
![Rectangle image with a burnt reddish background that features a black typewriter with lined paper swirling up out of it. The words: “#MEAction Partners with Writers Guild Initiative to Offer Writers Workshops, Weekends in November” appear in black font. The #MEAction logo is in the upper left hand corner and the Writers Guild Initiative logo is in the upper right hand corner.](https://www.meaction.net/wp-content/uploads/2023/10/MEAction-Partners-with-Writers-Guild-Initiative-Featured-Image-300x169.png)
#MEAction Partners with Writers Guild Initiative to Offer Writers Workshops
#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) to offer creative writing workshops
![Red Rectangle: #MEAction logo on the top, with the words Advocacy Win! NIH announces they will designate people with disabilities as a population with health disparities! in white font.](https://www.meaction.net/wp-content/uploads/2023/10/Advocacy-Win-Health-Disparities-1280-x-720-px-300x169.png)
Advocacy Win! Disability Partnerships Make a Difference for People with ME
The National Institutes of Health (NIH) announced they will designate people with disabilities as a population with health disparities.
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MEAction Scotland’s Response to: My full reality: the interim delivery plan on ME/CFS
As a charity we were pleased to be able to submit a longer response than is possible using the
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#MEAction State Chapters Are Making Advocacy Moves
#MEAction is thrilled to share the incredible work our State Chapters have been up to over the past couple
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#MEAction UK’s Response to DHSC (My full reality: the interim delivery plan on ME/CFS)
As a charity we were pleased to be able to submit a longer response than is possible using the
![Image is a sky blue rectangle, with an image of the #MEAction Maryland's logo that has the words Maryland State Chapter over an image of a lighthouse. On the righthand side if the image are the words, Join #MEAction's Marylans's #HelpMESenator Campaign in black font.](https://www.meaction.net/wp-content/uploads/2023/09/Join-MEAction-Marylands-HelpMESenator-Campaign-300x158.png)
Join #MEAction Maryland’s #HelpMESenator Campaign
We are writing this article to share some exciting news! On Tuesday, September 26, ME advocates delivered copies of
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“#MillionsMissing is our drumbeat”
RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th,
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JNNP to publish edited rapid response by MEAction UK.
MEAction UK have been in communication with the BMJ and are delighted to announce that the Journal of Neurology,
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#MEAction and Long COVID Justice Issue Press Statement about NIH Failure of Long COVID
#MEAction and Long COVID Justice issued a press statement yesterday about our communities’ deep concerns regarding the rollout of
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#MEAction UK interim update on JNNP complaint.
#MEAction UK has now received a reply to our complaint about the removal of our rapid response from the
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#MEAction’s Summer Work Heats Up
Halfway through summer, we have so much to report about our immense, day-to-day work advocating for M.E., for you,
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Mt Sinai PEM Study Now Recruiting
Dr. Natelson at Mt. Sinai is recruiting people to study PEM. Reimbursement for travel and time will be available.
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DHSC interim delivery plan on ME/CFS
My full reality: the interim delivery plan on ME/CFS is a great opportunity for the ME community to make
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Severe ME Artist Project 2023 — Gallery
A collection of works by artists with severe ME.
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MEAction UK challenges removal of rapid response from JNNP website.
MEAction UK has sent the following letter to the BMJ Editor in Chief, the JNNP Editor in Chief the
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#MEAction Calls for ME & Long COVID to be Part of COVID-19 Task Force
Urge Congress to hold our federal health and research agencies accountable for ME & Long COVID.
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#MEAction & Body Politic: We Are Stronger Together
Announcing #MEAction and Body Politic’s new collaboration: we are excited to announce that #MEAction will now host Body Politic’s
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MEAction UK submits a rapid response to the JNNP in support of NICE.
Below is the text of MEAction UK’s rapid response submitted to the JNNP article that was published 10th July
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MEAction UK’s response to the Guardian article 11 July 2023
MEAction UK is preparing a detailed response to the latest published paper attacking the NICE Guideline on ME/CFS. In
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Severe ME Artists Project 2023
#MEAction is thrilled to announce our Severe ME Artists Project 2023 that will feature work from those within the
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”Bed activism” at the Washington Monument & A Politics of Care
I’ve been involved in planning many #MillionsMissing actions during my time with #MEAction, but for me, protesting at the
![A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022.' A red banner is at the bottom of the photo with the ME Action Scotland logo and text which says, 'ME Action Scotland response to the Health Board survey about ME.’](https://www.meaction.net/wp-content/uploads/2023/08/Image-for-Scotland-survey-article-300x157.jpg)
#MEAction Scotland response to the survey of Health Boards
On 16th May 2023, the Scottish Government published the findings from an analysis of surveys issued to NHS Health