According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS).
Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease.
The NIH funds ME/CFS at $5 million per year, and that amount is estimated by the NIH to stay about the same through 2016. The NIH spends almost 10 times more on attention deficit disorder, 15 times more on infertility, and 80 times more on depression.
The IOM report confirms this dismal state of affairs, stating that remarkably little research funding has been made available, especially given the number of people afflicted.
Please help get more funding for this devastating and badly neglected illness. Please sign only if you are a resident of the United States. Thanks!
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Why We’re Sending out an SOS this #MillionsMissing
April 8, 2025
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On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to
