This #MillionsMissing, we are launching a campaign that is largely focused on the seismic cuts being made to research funding, healthcare, and disability services in the U.S.
We know that the state of U.S. research institutions will have a massive impact on whether we are able to advance research for myalgic encephalomyelitis (ME) and Long COVID over the next decade. This will impact everyone globally. We encourage you to join in the fight as we send an SOS to our governments to Save our Support Systems. Save our Science. Save Our Society!
And we encourage you to turn out in your own cities with your own impactful #MillionsMissing demonstrations calling on your own governments to invest in ME research and care. #MillionsMissing protests have always been so incredibly powerful, creative, and moving, and in these uncertain times, our community must continue to beat the drum for ME!
Join Us for #MillionsMissing 2025
- (USA) Join the protest at the Capitol in Washington, D.C.
- Host your own #MillionsMissing protest or gathering
- Show up on social media on May 12th
- Get creative—create SOS art with messages directed at your government/elected officials
- Check out UK’s #MillionsMissing campaign—coming soon!
Join our first organizing meeting: If you are interested in organizing a protest, gathering in a park as a community or making art, please join one of our protest organizing meetings on Thursday, April 10th.
Meeting #1: Thursday, 4/10 @ 12pm PT/3pm ET – Register Here!
Meeting #2: Thursday, 4/10 @ 3pm PT/6pm ET – Register Here!
US Organizers: Please see the full toolkit for more information on organizing an event and visual messaging ideas here. Global Organizers: Check out our toolkit here.
Show up from home: Showing up en masse and telling our story on social media is so critical! Please see our toolkit for information on how to show up on social media on May 12th, including creative ideas and messaging points.
#MillionsMissing demonstrations over the years
Now is the time to show up as a community to show our elected officials that they work for us, they get paid by us – and we will not stand by and watch them destroy our lives and our communities.
We are thrilled to bring our communities together this year to fight for recognition for our M.E. and Long COVID communities.
) and a message about #MillionsMissing with your own networks. Desktop: Download by right clicking on the image or clicking on the download icon in the bottom right corner of the image. Mobile:
1 thought on “#MillionsMissing 2025: Sending Out An SOS”
Is there a way to sign up to speak at the event in DC? I’m an incoming med student with ME and would love to speak on it if that’s part of the event.
Thanks for all you do.