#MEAction UK interim update on JNNP complaint.

#MEAction UK has now received a reply to our complaint about the removal of our rapid response from the Journal of Neurology, Neurosurgery & Psychiatry (JNNP). 

‘Thank you for your email. I can confirm that your complaint has been received and is currently under review by the Content Integrity team at BMJ. We will endeavour to respond to you in full as soon as possible.’ 

In order to understand who/what might have been behind the re-evaluation and removal of our rapid response to the article published in July’s JNNP criticising the process used by NICE to review evidence for the guideline on ME/CFS, the three authors of the response have submitted a subject access request to the JNNP.

The JNNP have acknowledged our request and replied:

‘Meanwhile, your email of 8th August making a subject access request for any personal information held by BMJ is being considered by our Data Protection Compliance Manager, who will revert to you directly on this.’

We are considering what further actions are available to us and will post further updates as they arise.

Facebook
Twitter
WhatsApp
Email

Latest News

Red rectangle with the 2025 #millionsmissing logo, then the words Share this SOS Image on your socials. the meaction logo at the bottom right corner.

Share This SOS Image On Your Socials

Please help us spread the word! Share and interact with #MEAction’s social media (we are @meactnet) and share this amazing artwork (above ⬆️ ) and a message about #MillionsMissing with your own networks. Desktop: Download by right clicking on the image or clicking on the download icon in the bottom right corner of the image. Mobile:

Read More »

Millions Missing Scotland 2025: Red alert for ME

This year, Millions Missing Scotland is raising a red alert. Will you be part of it? #MEAction Scotland volunteers will be outside the Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to urgently act on its promises. Around the world, millions are missing – from school, work, communities,

Read More »
redish square image with the US Capitol photo with a red overlay on top of it. The words Congress is hearing from us. Then the MEAction logo in the center bottom.

#MEAction: Congress Is Hearing from Us

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.  We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter

Read More »