On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS! The letter was led by Representative Amodei from Reno and signed by Senators Catherine Cortez Masto and Dean Heller, and Representatives Jackie Rosen, Ruben Kihuen and Dina Titus.
The effort was led by Courtney Miller and the Solve ME/CFS Initiative in partnership with Bob Miller, Anita Patton and Annettte Whittemore. People with ME/CFS across Nevada stood together to bring the very first ME/CFS delegation letter.
Thank you to the many residents of Nevada who took action to make this possible. View the complete letter here.
Why We’re Sending out an SOS this #MillionsMissing
April 8, 2025
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On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to
