Dr. Simin Ghatineh and Mark Vink, both of whom live with a severe form of ME, have had a paper published in the medical journal, Behavioural Sciences. It’s an evaluation of the Dutch FITNET trial, which claimed to show that internet-based GET and CBT helped adolescents with ME/CFS. As this analysis shows, flawed methodology and poor selection criteria created exaggerated recovery figures. In reality, participants were no better than the control group, and may even have had their recovery impeded. (The latter is in line with other research and numerous patient surveys which demonstrate the harm caused by these interventions.)
This paper is particularly relevant as the NHS prepares to launch its own £1m version of FITNET.

SOS: Save our Science
People disabled by ME and Long Covid across the UK send out an SOS. It’s time to send out our SOS signal, if we want to have funded research. May 12th, is Myalgic Encephalomyelitis Awareness Day. On this day, the #MillionsMissing of people with myalgic encephalomyelitis (ME) gather to demand an increase in research and