In the 1980’s HIV/AIDS was the number one cause of death in young adults in the U.S. Whole countries were being decimated. The NIH promised it would commit ten percent of its entire budget to fight HIV/AIDS. Thirty years later it’s still giving ten percent of its budget to HIV/AIDS.
Times are changing though and HIV/AIDS historic set aside may be coming to an end. That means hundreds of millions of dollars of research funding could be opening up. The question is how much will ME/CFS and/or FM get?
Read More

Why We’re Sending out an SOS this #MillionsMissing
On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to