We Are Fighting for YOU Everyday! Here’s How…

#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going! We are 50% towards our fundraising goal, and need your help to get us over the finish line!

We are fighting for clinicians who can diagnose and treat ME – that is why we organized 20 medical education events this year, educating hundreds of clinicians about ME/CFS, as part of our #TeachME, TreatME Campaign. It is why we are working with the Mayo Clinic to educate nurses about ME/CFS. It is why our Scientific Director co-authored the Mayo Clinic Proceedings paper on ME/CFS, which hit over 100,000 views this year!

We are fighting for equitable research funding for ME/CFS – that is why we launched a petition and collected over 7,000 signatures, calling for the NIH Director to fund the ME/CFS Research Roadmap

We are fighting for access to home care services for our most vulnerable – that is why #MEAction is working with the Minnesota Department of Health to launch a pilot program to help people with ME and Long COVID access home care benefits.   

We are fighting to save telehealth access to doctors it is why we are rallying our community to call their representatives and demand they extend telehealth coverage before it expires in January. 

We are fighting for the world to understand the crisis of ME – that is why we participated in panels at The Washington Post, at the Society to Improve Diagnosis in Medicine, and at RECOVER TLC to advance Long COVID & ME drug development at the NIH. It is why we continue our robust press engagement, and why we launched a podcast to discuss everything ME-related. 

We are organizing our community – that is why #MEAction’s 13 state chapters are organizing for local change across the U.S., and were so instrumental in making our #TeachME, TreatME campaign a resounding success.  It is why we organize weekly advocacy groups to bring in the tremendous talent of our community in our fight for change.

We love and support our community – it is why our numerous support groups are constantly gaining new members and holding space for those with ME or caregivers. It is why we organize programs throughout the year to bring our community together, like our Severe ME Artists Project.  

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redish square image with the US Capitol photo with a red overlay on top of it. The words Congress is hearing from us. Then the MEAction logo in the center bottom.

#MEAction: Congress Is Hearing from Us

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.  We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter

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blackish rectangle with the words, MEAction Georgia Volunteer - Maggie Boxey- at TEDxOjia with the meaction logo in the bottom right corner.

#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai

#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a Navy veteran, and a published author, recently gave a Tedx talk about her experience as a person with ME. Maggie was diagnosed a year ago but has been sick since 2020. Before becoming sick Maggie and

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SOS: Save our Science

People disabled by ME and Long Covid across the UK send out an SOS.  It’s time to send out our SOS signal, if we want to have funded research. May 12th is Myalgic Encephalomyelitis Awareness Day. On this day, the #MillionsMissing with myalgic encephalomyelitis (ME) gather to demand an increase in research and care for

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