CANARY CORPS – New Grassroots Program Coming Soon

I’ve got exciting news to share!

In early 2024, #MEAction will launch a new grassroots, peer-run program in the United States to help people with ME, Long COVID, and other infection-associated chronic illnesses find and access local services and support for people with disabilities.

This will be an innovative and radical program that is run by, and built for, our sick and disabled community. We call it: Canary Corps.

Our community knows well what it’s like to be the “canaries in a coal mine.” We’ve long sounded the alarm on the societal dangers of ignoring infection-associated chronic illnesses, which exacerbate existing social inequities. 

Our warnings went unheeded and now, following a mass-disabling pandemic, we must take collective action to help one another survive the rampant ableism and medical gaslighting that makes getting the care and support we need to live so difficult.

We will help our fellow “canaries” to break through the barriers to accessing the disability services and supports we deserve—and that prior generations of disabled activists fought for.

Graphic of yellow canary over black and white photo of a coal mine. Text reads "coming soon: Canary Corps"

How will Canary Corps help?

Canary Corps initial focus will be to help people access support in the following areas:

  1. Affordable health insurance guidance
  2. Medical care coordination/case management
  3. Regional centers for disability information, advocacy, and assistance
  4. Home – and community- based services for people with disabilities

We are starting with these four areas because established, local disability services and supports do exist but our community often has difficulty finding and accessing them. Canary Corps will help people to bridge gaps they face in accessing support for these disability-related and daily life needs.

In the future, we hope to be able to add support in other areas as we identify solutions to help bridge other gaps our community faces as well.

When will Canary Corps launch?

We will start offering assistance when we have recruited and trained an initial base of volunteers. Our tentative launch date is early 2024.

What is next?

Are you excited to learn more about Canary Corps and to get involved? Here are 5 things you can do right now:

  1. Visit canarycorps.org to learn more about the program.
  2. RSVP for our 1st community education workshop on December 6th at 4pm ET (open to both people looking for help and those interested in volunteering).
  3. Sign up to get program updates or volunteer.
  4. Share your ideas with us of other ways Canary Corps could help bridge the gaps people face to access help.
  5. Donate to support our work and fund BOLD ACTION to make sure these type of programs continue for years to come.

Canary Corps will strive to embody the principles of disability justice in our work, which means pursuing liberation and justice for those targeted by racism, misogyny, queerphobia, and other forms of discrimination and their intersection with disability.

As sick and disabled people, I truly believe our most radical form of protest against systems of oppression is what disabled writer Johanna Hedva calls “a politics of care.” We do this by building communities of protection and enacting forms of support that take seriously our own precarity—which is why we’re creating Canary Corps. 

I hope you will join us in building a new “politics of care.” 

In solidarity,
Ben at #MEAction

Facebook
Twitter
WhatsApp
Email

Latest News

black rectangle with white squiggles in the background. red bubbles and honeycomb in the corners. in the middle a red box that reads: #MEAction & the Mayo Clinic awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant. #MEAction logo in the bottom right hand corner

#MEAction & Mayo Clinic Projects Continue – New Grant Awarded

Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by

Read More »

You’re Invited: The Beth Mazur Innovation Prize Fundraiser

You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST. Beth Mazur, who co-founded #MEAction was a kind and compassionate human being. She cared deeply about the ME and the Long COVID communities. She also cared deeply about innovation, new creative ways to solve problems that

Read More »
rectangle image with a purpleish marble background. In the center is a blue square with the words a very modified movement class - nov 15th-. the #MEAction logo and nourish therapeutic yoga logo at the bottom.

A Very Modified Movement Class on 11/15

Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT. This class has been crafted specifically for people with ME. This 30 minute class will be hosted virtually. We are, once again, thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga, who has

Read More »
Scroll to Top