#MEAction UK interim update on JNNP complaint.

#MEAction UK has now received a reply to our complaint about the removal of our rapid response from the Journal of Neurology, Neurosurgery & Psychiatry (JNNP). 

‘Thank you for your email. I can confirm that your complaint has been received and is currently under review by the Content Integrity team at BMJ. We will endeavour to respond to you in full as soon as possible.’ 

In order to understand who/what might have been behind the re-evaluation and removal of our rapid response to the article published in July’s JNNP criticising the process used by NICE to review evidence for the guideline on ME/CFS, the three authors of the response have submitted a subject access request to the JNNP.

The JNNP have acknowledged our request and replied:

‘Meanwhile, your email of 8th August making a subject access request for any personal information held by BMJ is being considered by our Data Protection Compliance Manager, who will revert to you directly on this.’

We are considering what further actions are available to us and will post further updates as they arise.

Facebook
Twitter
WhatsApp
Email

Latest News

black rectangle with white squiggles in the background. red bubbles and honeycomb in the corners. in the middle a red box that reads: #MEAction & the Mayo Clinic awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant. #MEAction logo in the bottom right hand corner

#MEAction & Mayo Clinic Projects Continue – New Grant Awarded

Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by

Read More »

You’re Invited: The Beth Mazur Innovation Prize Fundraiser

You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST. Beth Mazur, who co-founded #MEAction was a kind and compassionate human being. She cared deeply about the ME and the Long COVID communities. She also cared deeply about innovation, new creative ways to solve problems that

Read More »
rectangle image with a purpleish marble background. In the center is a blue square with the words a very modified movement class - nov 15th-. the #MEAction logo and nourish therapeutic yoga logo at the bottom.

A Very Modified Movement Class on 11/15

Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT. This class has been crafted specifically for people with ME. This 30 minute class will be hosted virtually. We are, once again, thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga, who has

Read More »
Scroll to Top