We’re Asking Congress To NOT Forget ME!

COVID-19 has significantly changed our lives in so many ways. With the recent increase in funding to study long COVID, there is understandably mixed-feelings in the ME community. While everyone wants those with long COVID to have the success people with ME so desperately deserve, for some, there is a fear of ME being lost in the search for answers for long COVID. 

#MEAction has worked hard to make sure that people with ME are not lost in the narrative of long COVID, and those newly diagnosed with ME or comorbid conditions after having COVID get the care they need. Our goal is that by joining together, with those experiencing long COVID symptoms, and with those with comorbid conditions, will help us all- that together, we can all get the care and research needed to make all of this suffering history. It’s why we launched the #StopRestPace campaign. It’s why we’ve urged NIH to accelerate ME research, renew funding for and expand the number of CRCs, and catalyze necessary clinical treatment trials. And it’s why we joined in coalition with 20 other organizations to provide recommendations regarding the 2020 COVID relief package in December. 

Now, #MEAction and 10 other ME organizations wrote an additional letter to congress asking them to study very specific aspects of long COVID drawing upon the combined knowledge and expertise the ME community brings to these issues. We know this is crucial, and we are not wasting any time. 

Image of US Capitol Building

Congressional Letter
#MEAction joined 10 other ME organizations including Solve M.E., Open Medicine Foundation, Institute for Neuro-Immune Medicine Nova Southeastern University, Bateman Horne Center, Simmaron Research, Whittemore Peterson Institute, Pandora, Minnesota ME/CFS Alliance, Florida ME/CFS Patient United, and Massachusetts ME/CFS & FM Association, to urge Congress to consider additional priorities for the upcoming federal 2021 COVID-19 relief package to continue building on the momentum of the $1.15 billion investment announced in December. Our hope is that these broad requests will be a start in the allocation of funding to the research priorities our community has been asking for.

Facebook
Twitter
WhatsApp
Email

Latest News

Red rectangle with the 2025 #millionsmissing logo, then the words Share this SOS Image on your socials. the meaction logo at the bottom right corner.

Share This SOS Image On Your Socials

Please help us spread the word! Share and interact with #MEAction’s social media (we are @meactnet) and share this amazing artwork (above ⬆️ ) and a message about #MillionsMissing with your own networks. Desktop: Download by right clicking on the image or clicking on the download icon in the bottom right corner of the image. Mobile:

Read More »

Millions Missing Scotland 2025: Red alert for ME

This year, Millions Missing Scotland is raising a red alert. Will you be part of it? #MEAction Scotland volunteers will be outside the Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to urgently act on its promises. Around the world, millions are missing – from school, work, communities,

Read More »
redish square image with the US Capitol photo with a red overlay on top of it. The words Congress is hearing from us. Then the MEAction logo in the center bottom.

#MEAction: Congress Is Hearing from Us

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.  We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter

Read More »