We are thrilled to share that The US ME/CFS Clinician Coalition has launched a website to provide clinicians with expert information on the diagnosis and management of myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS).
The website includes the basics of clinical management, diagnosis and management, comorbid conditions, and resources on helping people with ME access disability accommodations. This is truly a valuable resource.
We encourage you to SHARE the website with your medical providers to best inform them about ME/CFS. *We have provided a simple email template for you below!*
The US ME/CFS Clinician Coalition is a group of US ME/CFS expert clinicians who have collectively spent hundreds of years treating many thousands of ME/CFS patients. In addition to their clinical practices, Coalition members are active in ME/CFS research. They have authored primers on clinical management, developed medical education courses, and served on the NAM panel that authored the 2015 report on ME/CFS. You can learn more about the Coalition and contact them through their website.
The US Clinician Coalition issued a statement along with the new website saying, “A significant proportion of people with ME/CFS have not been properly diagnosed and have struggled to access appropriate clinical care. Many medical providers have reported uncertainty about how to diagnose and care for ME/CFS patients.
“In 2015, the National Academy of Medicine(NAM) established new clinical criteria focused on the core features of the disease to improve diagnosis. While there are not yet specific diagnostic biomarkers or evidence-based treatment guidelines for ME/CFS, there are many actions a medical provider can take to reduce symptom burden and improve quality of life for people with ME/CFS.”
The goal of this website is to help medical providers deliver better care. The website provides information about ME/CFS and the best clinical diagnosis, treatment, and management practices used by experts in the field. It also provides links to information on key comorbidities, disability,work and school accommodations. There are links to various medical education courses, including CMEs, plus key reports and research efforts. Additional information will be added as it becomes available.
SHARE the Website with your Doctor!
We want to ask everyone in the #MEAction community to share widely with their doctors. You can use this sample email below:
EMAIL TEMPLATE:
Dear (Insert Name),
An important new resource for clinicians about diagnosing and treating ME/CFS was just launched by the US ME/CFS Clinician Coalition.
The US ME/CFS Clinician Coalition is a group of US ME/CFS expert clinicians who have collectively spent hundreds of years treating many thousands of ME/CFS patients. In addition to their clinical practices, Coalition members are active in ME/CFS research. They have authored primers on clinical management, developed medical education courses, and served on the NAM panel that authored the 2015 report on ME/CFS. You can learn more about the Coalition and contact them through their website.
As a (person with ME/ A caregiver of someone with ME/ an ally to people with ME), I am urge you to check out this website.
Many thanks,
(Insert Name)
