School nurses, counselors, social workers or teachers in any U.S. state can now earn earn 3.25 Continuing Education credits (CNE) for completing a course on pediatric myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The course is titled, ““Why Can’t This Child Get to Class? Learn How ME/CFS Keeps Youth from Attending School.”
The course features Dr, Peter Rowe, the nation’s leading clinician and expert on pediatric ME/CFS. It includes talks from an integrative RN who treats people with ME, and parents of children with ME. The course is accredited by the American Nurses Credentialing Center, so any nurse in any state can receive 3.25 CNEs or Professional Development Points (PDPs) for completing it. The fee is $25.
Please share with school professionals, nurses and parents who might need a resource to educate their child’s school staff or health care team. You can use this flyer to distribute information about the pediatric course: Online Program Flyer ME CFS.
The course is the result of collaborative efforts of the Massachusetts ME/CFS and FM Association and Northeastern University School Health Academy.
Below, (and here as pdf), are a list of resources about ME/CFS accompanying the course.
Additional resources:
“ME/CFS and Pediatrics,” Open Medicine Foundation. 2018. Retrieved from:
https://www.omf.ngo/mecfs-and-pediatrics/
“Helping Your Child Manage Myalgic Encephalomyelitis/Chronic Fatigue
Syndrome (ME/CFS): Fact Sheet for Parents and Guardians,” Centers
for Disease Control and Prevention, 2017. Retrieved from: https://cste.confex.com/cste/2018/mediafile/Handout/Paper9630/me-cfs-children-parents.pdf
“Myalgic Encephalomyelitis/Chronic Fatigue Syndrome,” Centers for Disease
Control and Prevention, 2018. Retrieved from:
https://www.cdc.gov/me-cfs/
“Managing ME/CFS in Children and Adolescents Fact Sheet for Healthcare
Professionals,” Centers for Disease Control and Prevention, 2017.
Retrieved from: https://cste.confex.com/cste /2018/mediafile/Handout/Paper9630/me-cfs-children-healthcare-pros.pdf
“Helping Students Who Have Myalgic Encephalomyelitis/Chronic Fatigue
Syndrome (ME/CFS) Fact Sheet for Education Professionals,” Centers
for Disease Control and Prevention, 2017. Retrieved from: https://cste.confex.com/cste/2018/mediafile/Handout/Paper9630/me-cfs-children-educators.pdf
“Estimating the disease burden of ME/CFS in the United States and its
relation to research funding”. J Med Therap. Dimmock ME, Mirin AA,
Jason LA (2016). Retrieved from: https://www.oatext.com/Estimating-the-disease-burden-of-MECFS-in-the-United-States-and-its-relation-to-research-funding.php#Article_Info
“Myalgic Encephalomyelitis: Unknown cause. No cure. New hope.” By Lilly Williams.
ASBMBTODAY Feature on Lizzie Mooney. Retrieved from:
http://www.asbmb.org/asbmbtoday/201803/Feature/ME/
“Unrest”. 2017 Film. Available on all online streaming outlets. Retrieved
from: https://www.unrest.film/
“Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and
Management in Young People: A Primer,” Front. Pediatr., 19 June
2017. Dr. Peter Rowe et al. Retrieved from:
https://www.frontiersin.org/articles/10.3389/fped.2017.00121/full
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) School Fact
Sheet For Parents, Educators, and School Nurses, Dr. Faith Newton,
Delaware State University August 2017. Retrieved from: https://neusha.org/visit-neusha/wpcontent/uploads/2018/10/ME-CFS-School-combined-1.pdf
Solve ME/CFS Initiative:
Back to School Webinar Part 1: “504 Education Plans and Medical
Accommodations.” Retrieved from:
https://www.youtube.com/watch?v=P8lMaN3z5pk&feature=youtu.be
and Part 2:” IEPs for students with ME/CFS in public schools.”
Retrieved from: https://www.youtube.com/watch?v=ZLcSTzElsrI
“School Nurses Can Improve the Lives of Students With Myalgic
Encephalomyelitis/Chronic Fatigue Syndrome.” Kenneth J. Friedman,
Beth Battey, Faith Newton. NASN School Nurse. 2018. Retrieved from:
http://journals.sagepub.com/doi/full/10.1177/1942602X18795299
Videos on pediatric ME/CFS featuring Dr. Peter Rowe:
http://voicesfromtheshadowsfilm.co.uk/paediatric-mecfs/
Key Organizations:
American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society
https://ammes.org/
Massachusetts ME/CFS & FM Assoc. https://www.massmecfs.org/
Open Medicine Foundation, https://www.omf.ngo/what-is-mecfs/
MEAction, https://www.meaction.net/
Solve ME/CFS Initiative, https://solvecfs.org/
