Urgent – Contact Your Senators Now to Co-sponsor the ME/CFS Awareness Day Resolution

***UPDATE: THIS ACTION IS NOW OVER***

 

Please contact your SENATORS and urge them to co-sponsor a ME/CFS Awareness Day Resolution NOW!

Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, May 8th, they’re willing to accept co-sponsors up until the passage of the bill, targeted for this Fri, 5/10. Senators Markey and Collins will then “hotline” the resolution on Wednesday, May 8th with the intent of passing it Friday, May 10th. If your senators cannot make the  deadline to co-sponsor, please ask them to support – or at least not object to – the Resolution’s passage by unanimous consent.

Contact Your Senators

If you know a staffer at your senators offices, please contact them directly!

The Resolution:

(1) supports the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day.
(2) Recognizes and affirms the commitment of the United States to—

(A) supporting research and medical education for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and
(B) promoting awareness among health professionals and the public about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and

(3) recognizes the continued importance of—

(A) health care professionals and medical researchers who care for individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; and
(B) the work of the National Institutes of Health, the Centers for Disease Control and Prevention, and other Federal agencies, in conjunction with researchers, clinicians, stakeholders, experts, and individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, to discover the cause of, and develop and improve diagnosis of, treatments for, and a cure for, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

You can read the full resolution here.

PHONE CALL INSTRUCTIONS:

After you have sent your emails, please follow up with a call to your Senator’s office. Go here to find your SENATORS: https://www.senate.gov/general/contact_information/senators_cfm.cfm

Once you have identified the phone number for their Washington DC office, you can use the script below to make your call.

CALL SCRIPT:

Hello, my name is _______ (your name) and I am calling from _______ (city), ______ (state) in zip code ______ (your zip code). I am calling to ask Senator _________ to please co-sponsor a resolution in support of ME/CFS Awareness Day.

I already emailed this request and the resolution to your office. Although the original co-sponsors would like to receive sign-ons as soon as possible and ideally by COB Wed, 5/8 they’re willing to accept co-sponsors up until the passage of the bill, targeted for this Fri, 5/10 If your office cannot make this deadline, please let us know that the Senator will support – or at least not object to – the Resolution passing by unanimous consent.

To sign on, please contact Brianna Battle in Senator Markey’s office at [email protected] or (202) 224-2742 or Maria Olson in Senator Collins’ office at [email protected] or (202) 224-2523.

Facebook
Twitter
WhatsApp
Email

Latest News

black square image with two white lines at the top and bottom of the image. Then another two white lines come out from the sides to the middle over the #MEAction logo and the words, #NotJustFatigue Video Series Elizabeth Ansell Interview.

#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell

Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of the videos include topics such as: You Have No Idea How Serious This Is, Nobody Believes ME, and It’s Not Hysteria: It’s Sexism. In these

Read More »
navy blue square. there are two white lines at the top and bottom of the square. The #MEAction logo in at the top of the image. The words #MEAction Georgia Voice of the Patient in coordination with the Center for Disease Control and Prevention & Emory School of Nursing.

#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing

Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory School of Nursing to host, Voice of the Patient: A Panel Discussion with #MEAction Georgia. This event was a continuation of #MEAction Georgia’s #MillionsMissing 2024: #TeachMETreatME programming. Erin Lee and Liz Burlingame of the #MEAction Georgia

Read More »
a light blue square image with medical instruments/tools as a border (pill bottles, scales, needles, covid protein spike, etc). At the top of the image is the Home Test to Treat Program logo, in blue font: Findings Summary. Below that the #MEAction logo and Body Politic Logo.

Home Test To Treat – Findings Summary

#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program! Here are some highlights: 80K + enrolled in the program across the country! 40K + test distributed 6K + individuals treated for COVID-19 or flu 5.6K+ organizations

Read More »
Scroll to Top