CBT and GET survey results published by Forward-ME Group

In January 2019, a survey investigating the impact of graded exercise therapy (GET) and cognitive behavioural therapy (CBT) for people with ME, CFS or PVFS diagnoses in the UK was made available online. It was intended to provide up-to-date data on the impact these therapies have had on people who have been offered or received them since the 2007 NICE guidelines that recommend them were introduced.

The NICE guidelines are currently being rewritten and are due to be published in October 2020.

Statement from Forward-ME Group

We are pleased to be able to let you see the results of the recent survey conducted on behalf of Forward-ME by Professor Helen Dawes and her team at Oxford Brookes University.

 

Bearing in mind that this survey was organized at very short notice and that we are aware that there are some shortcomings such as a selective bias in that only people with on-line access and the ability to complete the questionnaire were included, we are very grateful to all who responded so quickly.

 

The results have been well received by the Chairman of the NICE Guideline Development Group and will, we hope, be helpful to the Group as they develop the new guideline for ME/CFS.

Read the full report from Oxford Brookes University here and find the appendices here.

It concludes:

In summary, the majority of individuals reported deterioration or no change in symptoms and health over the course of all treatment approaches.

#MEAction UK have also written a shorter summary highlighting the key findings here.

We conclude that “these results clearly show that GET and CBT are not safe treatments for people with ME, CFS or PVFS. For those who received both treatments, reported outcomes are even worse. The results parallel those of previous patient surveys (Geraghty et al., 2016) and reinforce the call for GET and CBT to be suspended as treatments immediately.”

 

Facebook
Twitter
WhatsApp
Email

Latest News

black rectangle with white squiggles in the background. red bubbles and honeycomb in the corners. in the middle a red box that reads: #MEAction & the Mayo Clinic awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant. #MEAction logo in the bottom right hand corner

#MEAction & Mayo Clinic Projects Continue – New Grant Awarded

Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by

Read More »

You’re Invited: The Beth Mazur Innovation Prize Fundraiser

You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST. Beth Mazur, who co-founded #MEAction was a kind and compassionate human being. She cared deeply about the ME and the Long COVID communities. She also cared deeply about innovation, new creative ways to solve problems that

Read More »
rectangle image with a purpleish marble background. In the center is a blue square with the words a very modified movement class - nov 15th-. the #MEAction logo and nourish therapeutic yoga logo at the bottom.

A Very Modified Movement Class on 11/15

Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT. This class has been crafted specifically for people with ME. This 30 minute class will be hosted virtually. We are, once again, thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga, who has

Read More »
Scroll to Top