On May 24th, 2018, we delivered this 580-page letter to Francis Collins, with over 7,000 signatures, photos, and personal comments.
We are demanding urgent action to increase funding for research, find a diagnostic test, support clinical trials, and develop treatments, and a meeting to discuss all this with NIH Director Francis Collins.
We also sent this video plea to Francis Collins, demanding answers. (Warning: This video is hard, like so much of the work we do. It’s emotional- and it is why we sent it to Francis Collins along with everything else. He has to see it. He has to listen.)
Many of you all over the world sent us a plea, Whitney’s Plea, brought to us by the fearless family of Whitney Dafoe. Whitney has been severely ill with ME for far too long, and like millions of other patients worldwide, Whitney deserves to come back to his life.
See the Full PDF sent to Francis Collins Here.
#MEAction & Mayo Clinic Projects Continue – New Grant Awarded
November 18, 2024
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Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by
3 thoughts on “Thousands sign letter to be delivered to Francis Collins”
Thank you and hope that a cure is found soon. I too have found myself recently diagnosed with this illness. I was fine one day and wasn’t the next. Hoping that medical community will crack the code and find the answers so we can get our lives back.
🙏 Thank you!
Signed and shared! This utterly life shattering illness needs more recognition and investigative research for treatments. Doctors and medical professionals need more training and more awareness!
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