On May 24th, 2018, we delivered this 580-page letter to Francis Collins, with over 7,000 signatures, photos, and personal comments.
We are demanding urgent action to increase funding for research, find a diagnostic test, support clinical trials, and develop treatments, and a meeting to discuss all this with NIH Director Francis Collins.
We also sent this video plea to Francis Collins, demanding answers. (Warning: This video is hard, like so much of the work we do. It’s emotional- and it is why we sent it to Francis Collins along with everything else. He has to see it. He has to listen.)
Many of you all over the world sent us a plea, Whitney’s Plea, brought to us by the fearless family of Whitney Dafoe. Whitney has been severely ill with ME for far too long, and like millions of other patients worldwide, Whitney deserves to come back to his life.
See the Full PDF sent to Francis Collins Here.
White House Halts Funding for Long COVID Grants
March 27, 2025
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The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.
3 thoughts on “Thousands sign letter to be delivered to Francis Collins”
Thank you and hope that a cure is found soon. I too have found myself recently diagnosed with this illness. I was fine one day and wasn’t the next. Hoping that medical community will crack the code and find the answers so we can get our lives back.
Signed and shared! This utterly life shattering illness needs more recognition and investigative research for treatments. Doctors and medical professionals need more training and more awareness!
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