Hello, I’m Nevra Elis Ahmed. I’m currently working as a volunteer project manager, translator and regional representative for Pakistan. I’ve been suffering with ME/CFS since I was 6 and I am 22 now. I could only get diagnosed last year.
In the past, I have hosted and organised two screenings of Unrest to get the dialogue started with regards to ME/CFS in Pakistan. We had a wonderful response and gained allies within the media. Watch videos from the events below.
Now I need help with launching our foundation’s Facebook page as well as revising our mission statement for our foundation. ME/CFS has stolen much from me and getting diagnosed quite late was a huge factor in my worsening. I could never continue my education or make it to university. I do not want it to steal more lives so I will be launching the “Neglected Chronic Illnesses Foundation” in Pakistan, which will focus on ME/CFS, MS, Lupus, Endometriois, Orthostatic Intolerance, and Polycystic Ovarian Syndrome.
We will provide patient care, resources and support as well as spread awareness for these diseases and set up collaborative projects between international and regional researchers so when the cure is found it doesn’t take ten years for it to reach Pakistan. Our headquarters will be in Pakistan but we will eventually branch out to other Asian and Middle Eastern countries.
I’d love to get more help on this project especially if you have any experience with social media projects or setting up a page.
Also, please connect to our #MEAction Pakistan Facebook Group.
Unrest Screenings in Karachi:
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
#MEAction is raising the alarm about Cochrane Collaboration’s sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Cochrane has also altered the date of publication to 2024 to make the review appear current when, in fact, its sources are all 10 years old or
1 thought on “Chronic Illness Foundation Launches in Pakistan – Call for Support”
Nevra now suffers from pmdd too.
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