OMF is launching a new research study to perform a retrospective analysis of clinical laboratory data from hundreds of ME/CFS patients. This study will gather and analyze the clinical laboratory tests and results ordered by ME/CFS specialists. OMF is hopeful that analyzing a large number of clinical records using robust statistical methods may reveal new insights.
Drs. David Kaufman and Bela Chheda (Center for Complex Diseases, CA) and Dr. Susan Levine (ME/CFS Clinician & Researcher, NY) will lead the first phase of this study using de-identified results from their patients. Later, OMF hopes to bring on additional clinicians. Eventually, OMF plans to share the results with the whole ME/CFS medical and research communities.
OMF is very grateful to the newest partner, Statisticians without Borders, who has stepped in to lead the data analysis pro-bono. Hany Zayed, PhD, Head of Data Sciences Solutions, Rigel Pharmaceuticals and Statisticians Without Borders volunteer will lead this project.
Why We’re Sending out an SOS this #MillionsMissing
April 8, 2025
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On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to
