OMF is launching a new research study to perform a retrospective analysis of clinical laboratory data from hundreds of ME/CFS patients. This study will gather and analyze the clinical laboratory tests and results ordered by ME/CFS specialists. OMF is hopeful that analyzing a large number of clinical records using robust statistical methods may reveal new insights.
Drs. David Kaufman and Bela Chheda (Center for Complex Diseases, CA) and Dr. Susan Levine (ME/CFS Clinician & Researcher, NY) will lead the first phase of this study using de-identified results from their patients. Later, OMF hopes to bring on additional clinicians. Eventually, OMF plans to share the results with the whole ME/CFS medical and research communities.
OMF is very grateful to the newest partner, Statisticians without Borders, who has stepped in to lead the data analysis pro-bono. Hany Zayed, PhD, Head of Data Sciences Solutions, Rigel Pharmaceuticals and Statisticians Without Borders volunteer will lead this project.
#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory School of Nursing to host, Voice of the Patient: A Panel Discussion with #MEAction Georgia. This event was a continuation of #MEAction Georgia’s #MillionsMissing 2024: #TeachMETreatME programming. Erin Lee and Liz Burlingame of the #MEAction Georgia