With the excitement and attention around the theatrical premiere of ‘Unrest’ in NYC this month now is the time to take ME advocacy and activism to a new level in New York. Over the past year there has been increasing progress at the state level.
Last fall a #MillionsMissing protest was held in front of the Health and Human Services New York office with prominent AIDS activists speaking out against the situation currently faced by people with ME in New York. In May of this year the New York State Health Commissioner sent a letter to over 85k medical providers in New York about ME. Then in June State Senator Brad Hoylman introduced a New York State Resolution on ME.
#MEAction has more behind-the-scenes plans for New York, but we can’t do it without your help. We need people with ME, their caregivers and allies, to come together to help New York lead the nation in addressing this public health crisis.
Join the New York #MEAction organizing meeting to get started!
Please join us for the first ever New York #MEAction organizing meeting. Saturday, October 7, 2017 from 1:00-3:00 pm. The purpose of the meeting is to form a coalition of people with ME and allies to organize New York actions, develop our strategy, and form a community! We need you there!
#MEAction: Congress Is Hearing from Us
April 23, 2025
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#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth. We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter
1 thought on “#MEAction Launches First New York Organizing Meeting”
Hello there!
Huge Kudo’s to you guys all around the world, for the awesome work you do!
I’m from South Africa, and from what I can see, we have no affiliation to #ME Action or #Millions MIssing. How would we go about setting up this relationship? ME is still very much unknown in SA, with some medical aids specifically excluding ME, CFS, PVFS, And Fibro – I kid you not; they found every possible name! Most doctors do not even entertain the concept of ME – I am blessed to have found my doc (after seeing many many others); who actually diagnosed me 12 years ago.
I’m very keen to investigate the possibility of setting up a group in this country – would appreciate guidance from you.
Keep fighting the good fight! Never ever give up…..
Warm regards
Debbie
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