On September 8th, Nevada’s full Congressional Delegation sent a letter to Director Collins of the National Institutes of Health urging him to “strengthen and accelerate” its work on ME/CFS! The letter was led by Representative Amodei from Reno and signed by Senators Catherine Cortez Masto and Dean Heller, and Representatives Jackie Rosen, Ruben Kihuen and Dina Titus.
The effort was led by Courtney Miller and the Solve ME/CFS Initiative in partnership with Bob Miller, Anita Patton and Annettte Whittemore. People with ME/CFS across Nevada stood together to bring the very first ME/CFS delegation letter.
Thank you to the many residents of Nevada who took action to make this possible. View the complete letter here.
#MEAction & Mayo Clinic Projects Continue – New Grant Awarded
November 18, 2024
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Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by
