Senate Appropriations Committee Recommends Restoring ME/CFS Funding

On September 7, the ME/CFS community breathed a sigh of relief as the Senate Appropriations Committee passed S. 1711 with accompanying committee report language that recommends restoring the $5.4 million Chronic Fatigue Syndrome program under the CDC’s National Center for Emerging and Zoonotic Diseases.
In July, the House version of the budget (H.R. 3358) had zeroed out these funds in the House Committee report. Both the House and Senate reports include several recommendations to CDC, NIH, and HHS that were proposed by #MEAction, Solve ME/CFS Initiative, and other advocates during the May ME/CFS Advocacy Week.
We are pleased to see this support and growth of interest reflected in the Senate appropriations bills and look forward to continuing to fight for these items to be included after the reconciliation process in the final budget legislation in October.
This restored funding will not be official until the final budget is passed by October 1st. Some staffers expect there will be no budget compromise this year, but rather a continuing resolution that will repeat funding expenditures agreed upon in Fiscal Year 2015.

Facebook
Twitter
WhatsApp
Email

2 thoughts on “Senate Appropriations Committee Recommends Restoring ME/CFS Funding”

  1. I looked at the link to the Sept. appropriations bill, but didn’t see where $5.4 million for ME/CFS is funded. Is it in the total for NIH?

  2. Hi Carol –
    The $5.4 million is included as part of the CDC’s program program in the National Center for Emerging and Zoonotic Diseases. It is in that total. That amount is specified in the Committee report. The NIH funding is established separately. There is no Congressional line item for ME/CFS funding at the NIH.
    Hope this helps!
    ~Emily

Comments are closed.

Latest News

a multi-water colored image with the words, Severe ME Artists Project 2024 in white font outlined in black. the meaction action logo in the bottom right hand corner.

Severe ME Artists Project 2024

Quick Overview: Submit one piece of artwork – image, writing, or video Label your artwork with your name as you want it to appear, an underscore, and the number of years with severe ME Example: Lastname_FirstName_14 FirstNameOnly_ No copyrighted material If you are submitting a video, it must be under two minutes. Submission due by

Read More »
Light blue square with rainbows in the top left and bottom right corner. In the middle are the words, -Pride is Valid- No Matter How One Celebrates or Experiences It. #MEAction Board Member, Jennifer England, shares her views on Pride. The #MEAction logo in the top right corner.

Pride Is Valid No Matter How One Celebrates or Experiences It

In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England, about what Pride means to her and her wife who lives with severe ME. My wife and I have both been queer our whole lives, but in the 70s that was the quiet part you didn’t say out

Read More »

Questions to Ask Prospective MPs About ME/CFS

In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people with ME and Long Covid. It can be a little daunting to be unprepared so here are some questions you might want

Read More »
Scroll to Top