Dr. Simin Ghatineh and Mark Vink, both of whom live with a severe form of ME, have had a paper published in the medical journal, Behavioural Sciences. It’s an evaluation of the Dutch FITNET trial, which claimed to show that internet-based GET and CBT helped adolescents with ME/CFS. As this analysis shows, flawed methodology and poor selection criteria created exaggerated recovery figures. In reality, participants were no better than the control group, and may even have had their recovery impeded. (The latter is in line with other research and numerous patient surveys which demonstrate the harm caused by these interventions.)
This paper is particularly relevant as the NHS prepares to launch its own £1m version of FITNET.
#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell
Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of the videos include topics such as: You Have No Idea How Serious This Is, Nobody Believes ME, and It’s Not Hysteria: It’s Sexism. In these