#MEAction Network UK: FITNET letter published in Positive Health Online

#MEAction Network UK’s statement denouncing CBT as a form of treatment for ME has been published in the January edition of Positive Health Online today.

The letter was sent in response to FITNET, a controversial study that purported children and young people with ME could be successfully treated through CBT conducted over the internet. Esther Crawley of Bristol University argued that the study was not controversial, yet opposition to FITNET has remained widespread.

“The concept that ME can be improved with solely behavioural techniques is decades old, and frankly, an embarrassment to the nation’s scientific and patient community.”
–L.A. Cooper

In their November statement, #MEAction Network UK’s L.A. Cooper said reports of CBT being a treatment for ME are “ultimately very damaging”, while University of Berkeley’s David Tuller labelled the study “complete nonsense.”

“What a huge waste of time and money,” Tuller said.  “When will these people let go of their dysfunctional and delusional belief that CBT is the pathway to ‘recovery’ from this disease?”

This comes just a day after the publication of the preliminary PACE reanalysis from Tom Kindlon, Alem Matthees and Simon McGrath, deeming the “recovery” paper to be “highly misleading”.

With Naviaux’s metabolic findings, Columbia University’s immunology findings, evidence of gut bacteria abnormalities from Cornell University in the US, as well as research into pharmaceutical treatment Haukeland University in Norway and biomarker research in Australia’s Griffith University, why is the UK so far behind in ME research?

L.A. Cooper is urging British researchers to put aside discredited behavioural treatments and focus on the biological science of the disease in 2017.

“We can’t continue to feign ignorance and pretend other countries aren’t speeding ahead,” Cooper said.  “The concept that ME can be improved with solely behavioural techniques is decades old, and frankly, an embarrassment to the nation’s scientific and patient community.”

Click below to read more on Positive Health Online.

Facebook
Twitter
WhatsApp
Email

1 thought on “#MEAction Network UK: FITNET letter published in Positive Health Online”

Comments are closed.

Latest News

Red rectangle with the 2025 #millionsmissing logo, then the words Share this SOS Image on your socials. the meaction logo at the bottom right corner.

Share This SOS Image On Your Socials

Please help us spread the word! Share and interact with #MEAction’s social media (we are @meactnet) and share this amazing artwork (above ⬆️ ) and a message about #MillionsMissing with your own networks. Desktop: Download by right clicking on the image or clicking on the download icon in the bottom right corner of the image. Mobile:

Read More »

Millions Missing Scotland 2025: Red alert for ME

This year, Millions Missing Scotland is raising a red alert. Will you be part of it? #MEAction Scotland volunteers will be outside the Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to urgently act on its promises. Around the world, millions are missing – from school, work, communities,

Read More »
redish square image with the US Capitol photo with a red overlay on top of it. The words Congress is hearing from us. Then the MEAction logo in the center bottom.

#MEAction: Congress Is Hearing from Us

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.  We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter

Read More »