On Tuesday, March 8th at 10am ET, the NIH is holding a one hour tele-briefing to answer the community’s questions about their plans for the intramural study and the ME/CFS program. Due to the limitations of the technology, only 100 lines are available. Call-in information has been sent to a select number of advocates including members of the US Action Working Group and MEAdvocacy.
#MEAction is trying to ascertain how many free lines are still available after the RSVPs they have received. We are asking the NIH if we can share the remaining open lines with anyone in the community who is interested in participating, randomly selected from those who express interest. We don’t know if this will even be possible but if you are interested, please fill out this very short form.
#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell
Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of the videos include topics such as: You Have No Idea How Serious This Is, Nobody Believes ME, and It’s Not Hysteria: It’s Sexism. In these
1 thought on “Participate in the Tuesday March 8th NIH telebriefing”
Good idea 🙂
Comments are closed.