MedPage Today’s Update on ME/CFS Research Plans

MedPage Today reposted Shannon Firth’s earlier article on ME/CFS in their 2015 recap and also published an in-depth update by the author. The new article goes in-depth on Ron Davis’ plans for the Big Data study and also includes an interview with Jen Brea and information from the NIH about their planned study of sudden-onset patients at the NIH Clinical Center.
Shannon Firth writes about Ron Davis’ rejections by NIH, OMF’s 2015 donations, and plans for the Big Data study:

Davis, who is also a professor of biochemistry and genetics at Stanford University School of Medicine, saw two grant proposals rejected by the agency and then chose a different tack: private funding. OMF has collected $1.9 million in private donations this year. Davis said that technology companies in Silicon Valley have also volunteered to help in the analysis phase of his project, known as the Severely Ill Big Data study, for free or at a low cost.

The article ends with Jen Brea’s thoughts on potential progress in understanding the disease:

Brea’s hopeful that with adequate public investment, scientists will see major progress in the next 5 to 10 years. She believes finding the reason for her condition might be relatively straight-forward.
But, she added, “[i]t’s really hard to find an answer for something, when you’re not looking.”

Read the entire article on MedPage Today.