In the British media, ME activists who have opposed cognitive behavioral therapy (CBT) and graded exercise therapy (GET) are often been portrayed as an unreasonable, militant “minority.”
Members of the #MEAction Science and Treatment Policy and Media Working Groups have drafted this fact sheet to explain the real reasons why ME patients are opposed to CBT and GET. It’s not that we fear the stigma of mental illness. It’s that these treatments are ineffective and may actually make us worse. That view is held by more than 10,000 people around the world.
Whenever you see a journalist or someone on social media repeating these myths, you can share with them this sheet: “Why ME patients are critical of the PACE trial.”
[button_color url=”http://meaction.net/wp-content/uploads/2015/05/MEAction–patient-view-of-the-PACE-Trial-Controversy.pdf” content=”Open PDF” target=””]
You can also see more reports and fact sheets or help us draft new ones by joining the Media Working Group or the Public Awareness group.
#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
January 8, 2025
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Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory School of Nursing to host, Voice of the Patient: A Panel Discussion with #MEAction Georgia. This event was a continuation of #MEAction Georgia’s #MillionsMissing 2024: #TeachMETreatME programming. Erin Lee and Liz Burlingame of the #MEAction Georgia
1 thought on “Debunking the myth of the militant minority”
Thank you! This fact sheet couldn’t be more timely for me – I’ve just had a provider state that “Mayo Clinic treats CFS” and all I find on the Mayo Clinic site is CBT and GET. SO damaging!!!
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