Letter: Ask HHS to Investigate PACE

November 6, 2015

Author:

#MEAction

Dear #MEAction users,
Please find below a letter to HHS (CDC and AHRQ) calling on them to investigate the PACE trial and take whatever steps are needed to protect patients. This includes revising the AHRQ Evidence Review and CDC clinical guidelines to remove recommendations such as cognitive behavior therapy (CBT) and graded exercise (GET) that are based on PACE and other Oxford studies.
We are taking a vote of all registered users as to whether #MEAction should join the other organizations and formally sign this letter. Please respond by Sunday, November 8th at 12pm US EST.

1) Read the letter

2) Vote

[yop_poll id=”2″]

Categories: Polls, United States

Latest News

SOS: Save our Science

April 11, 2025 No Comments

People disabled by ME and Long Covid across the UK send out an SOS. It’s time to send out our SOS signal, if we want to have funded research. May 12th, is Myalgic Encephalomyelitis Awareness Day. On this day, the #MillionsMissing of people with myalgic encephalomyelitis (ME) gather to demand an increase in research and

Why We’re Sending out an SOS this #MillionsMissing

April 8, 2025 No Comments

On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to

Writers Guild Initiative Writing Workshops: Apply Today

April 4, 2025 No Comments

#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID**. WGI has graciously donated their time to offer these writer workshops through personal mentorship with the writers of the #MEAction community! The workshops consist of three sessions during