We’d love to start hosting periodic calls to allow #MEAction members to chat informally with co-founders Jen Brea and Beth Mazur – to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions.
As we use Google Hangout for these calls, they are strictly limited to eight participants in addition to Beth and Jen. Participation in this call is on a first come, first serve basis.
Our first call is this Friday, October 30th. The call will begin at 3:30pm US Eastern Time.
NOTE: Ignore the location! This is a virtual event. The Google Hangout link will be sent to all RSVP’d participants in advance of the call.
Join us
Why We’re Sending out an SOS this #MillionsMissing
April 8, 2025
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On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems. Save our Science. Save Our Society. HERE’S WHY: Healthcare, research funding and accessibility were already incredibly fragile for people with myalgic encephalomyelitis (ME), Long Covid and the disability communities. Now, we are seeing constant threats to
