BBC journalist's blog on ME

I would like to share an incredible blog post written by John Darvall, the BBC radio journalist who interviewed me and my family recently. He writes:
“When I knocked on the door to interview Naomi I knew little about M E. other than its dodgy reputation and the questions about whether it was actually a real illness. When I left Naomi’s parents home where she lives, having spoken to her, her mother and brother for an hour I cried.”
He ends by saying:
“I will now do more to help others with this condition. M E is dreadful, debilitating illness that when it takes hold it never lets go. For Naomi, for all those living with chronic pain and M E, I will do more while I can.”
It’s wonderful to know that there are journalists out there who are prepared to listen to what we say, and then speak out on our behalf. There is real hope that attitudes can and will be changed.

For more about the interview:
Update: Marathon for ME BBC Interview with Tom and Naomi Whittingham

Facebook
Twitter
WhatsApp
Email

1 thought on “BBC journalist's blog on ME”

  1. My daughter Kara has severe M.E. We as a family are greatful for any publicity about this serious condition. Kara was 16 when our lives were turned upside down. It’s been a battle ever since. To be treated with disbelief from medical professionals until recently has been the hardest to take. Not until Kara nearly died from sepsis were we ever taken seriously. Lucky for us Kara pulled through but remains severe. It was neglect and we could have taken it further but Kara didn’t want to. Her only remaining fight is to remain alive for a long as possible and doesn’t have the energy for anything else. As her mother I feel I’ve been robbed and still has yet to come to terms with terrible illness that has taken a bright young ladies future away from her.

Comments are closed.

Latest News

Red rectangle with the 2025 #millionsmissing logo, then the words Share this SOS Image on your socials. the meaction logo at the bottom right corner.

Share This SOS Image On Your Socials

Please help us spread the word! Share and interact with #MEAction’s social media (we are @meactnet) and share this amazing artwork (above ⬆️ ) and a message about #MillionsMissing with your own networks. Desktop: Download by right clicking on the image or clicking on the download icon in the bottom right corner of the image. Mobile:

Read More »

Millions Missing Scotland 2025: Red alert for ME

This year, Millions Missing Scotland is raising a red alert. Will you be part of it? #MEAction Scotland volunteers will be outside the Scottish Parliament in Edinburgh on Wednesday 14th May, from 12–2pm, calling on the Scottish Government to urgently act on its promises. Around the world, millions are missing – from school, work, communities,

Read More »
redish square image with the US Capitol photo with a red overlay on top of it. The words Congress is hearing from us. Then the MEAction logo in the center bottom.

#MEAction: Congress Is Hearing from Us

#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap, Medicaid, and telehealth.  We’ve been partnering with #NotJustFatigue on setting up congressional meetings in order to ask our elected officials for their support in making funding of the ME/CFS Research Roadmap a reality. #MEAction State Chapter

Read More »