New Features at #MEAction!

Announcing Private Messaging, and an Idea Center with real-time notifications.

You’ve all been unreasonably patient and understanding as we work through the bugs of our beta launch and work to build the best possible platform for you. The #MEAction team is thrilled to announce a new set of features available now for #MEAction members.

Private Messaging

We already have the Member Directory but we didn’t have a great way for you to get in touch with your fellow Network members. Enter private messages. Send chat-style messages to anyone else on #MEAction. Find their profile in the Member Directory and then click the blue “Message” button to start talking.
NOTE: Email notifications are only sent for the FIRST private message sent to you. If someone messages you, you’ll get an email the first time but not the next time she responds, or the third time, etc. You will however get a notification on the #MEAction website. We know, it’s not ideal and we’re working on a fix!

The Idea Center

The idea is a forum combined with a brainstorming session. It’s not an ME/CFS forum to discuss treatments and research, it’s a forum dedicated to helping ME/CFS activists strategize new methods, strengthen their ideas, and find collaborators for their actions. Come on over and get involved! It’s the perfect place to throw around that idea you’ve had for ages but never done anything with or to encourage people to start taking action on their own ideas.
A bonus feature is the real-time notification system specifically for the Idea Center. You might not see it now but when someone mentions you in the Idea Center or responds to what you write there, a notification will pop up on your screen in real time.

What’s next?

We’re just getting warmed up. In the coming months we hope to launch more and more new features to turn this platform into an unstoppable force. Planned updates and upgrades include:

  • Crowdfunding – specifically for ME and without fees
  • OneClick Politics – send email campaigns automatically to members of Congress or State Legislature.
  • More Actions! We need your help for this one. Check out why and how to promote your action at #MEAction

We can’t wait. Thanks for your help, support, encouragement, and patience! As always, contact us with any questions, problems, or ideas. We can’t wait to hear from you!

Facebook
Twitter
WhatsApp
Email

Latest News

black square image with two white lines at the top and bottom of the image. Then another two white lines come out from the sides to the middle over the #MEAction logo and the words, #NotJustFatigue Video Series Elizabeth Ansell Interview.

#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell

Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of the videos include topics such as: You Have No Idea How Serious This Is, Nobody Believes ME, and It’s Not Hysteria: It’s Sexism. In these

Read More »
navy blue square. there are two white lines at the top and bottom of the square. The #MEAction logo in at the top of the image. The words #MEAction Georgia Voice of the Patient in coordination with the Center for Disease Control and Prevention & Emory School of Nursing.

#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing

Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory School of Nursing to host, Voice of the Patient: A Panel Discussion with #MEAction Georgia. This event was a continuation of #MEAction Georgia’s #MillionsMissing 2024: #TeachMETreatME programming. Erin Lee and Liz Burlingame of the #MEAction Georgia

Read More »
a light blue square image with medical instruments/tools as a border (pill bottles, scales, needles, covid protein spike, etc). At the top of the image is the Home Test to Treat Program logo, in blue font: Findings Summary. Below that the #MEAction logo and Body Politic Logo.

Home Test To Treat – Findings Summary

#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program! Here are some highlights: 80K + enrolled in the program across the country! 40K + test distributed 6K + individuals treated for COVID-19 or flu 5.6K+ organizations

Read More »
Scroll to Top