On May 25, 2016, we did something extraordinary together: we held the largest, loudest protest ever held for ME/CFS.
We came out in force: in Boston, Dallas, San Francisco, Seattle, Washington D.C., Raleigh, and Atlanta; in London; in Melbourne; in a Canada-wide virtual protest; in Bergen, Norway; and in Belfast, Northern Ireland. Impromptu shoe displays popped up in Ottawa and the Netherlands. Thousands of patients, caregivers, clinicians, and stakeholders raised their voices together to demand better funding, better medical education, and government oversight for this overlooked, underfunded illness.
We received unprecedented media coverage for the protest. We met with our government officials as part of a coordinated effort from multiple advocacy organizations, meeting with over 20 U.S. Congress members and numerous HHS officials to discuss the demands, and the way forward.
And we can and will do more. We can and will get louder. We can and will be stronger.
Join the protest September 27, and raise your voice up alongside thousands of others until it shakes the government and the public awake. Let them know that anyone can get this illness. It is a public health emergency. And we can all do something about it.
Want to lead a protest? #MEAction can help get you oriented and provide you with materials.
Email millionsmissing@meaction.net if you are interested in leading a protest!
Not sure you can handle it on your own? Assemble a small team of leader-volunteers in your area.
Or, click below to join our Facebook #MillionsMissing volunteer group!
[button_color url=”https://www.facebook.com/groups/1095615747187468/” content=”Join our Volunteers!” target=””]
Join the Fight for Medicaid & Telehealth
March 26, 2025
No Comments
We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions. We are so grateful for the actions that you have taken with us to fight to protect Medicaid and Telehealth but we still have a long road ahead
5 thoughts on “Join the #MillionsMissing this Sept — Bigger. Louder. Stronger.”
I was going to join your FB page but it’s still pointing to the May 26 volunteer group. I want to do what I cancan, but I’m not well enough to lead a group. I also live in a very remote area so joining the FB page would probably be best.
Is this pointing to the correct page? If so, I’ll put in my request to join. Thanks for your help!
Kristina
Walhachin, British Columbia
We will still use the same Facebook group as we did last time, Kristina — it will save previous volunteers the trouble of re-signing up for a new group! Thanks for getting involved!
-J
Were you able to join? It looks like the FB page has been updated.
Thank you for letting me know. I submitted my request to join so I’m assuming I just need to wait until my request has been approved.
Thanks again for your help. I am VERY grateful for people like you who are working hard for BIG changes in how ME-CFS is diagnosed and treated, as well as education for the medical community and the public at large.
God bless each and every one of you.
Will there be ppl assembling in WAshington DC
Comments are closed.