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Research Roadmap Petition
We reached 7,000 signatures on our last letter. This time, our goal is 10,000. Please sign the letter today and share it with your friends and family.
SOS: #MEAction Responds to Urgent Crisis – MN Long COVID Funding At Risk
At 5:00 pm Eastern time yesterday, we found out that the Minnesota house would be voting on a bill
Share This SOS Image On Your Socials
Please help us spread the word! Share and interact with #MEAction’s social media (we are @meactnet) and share this
Millions Missing Scotland 2025: Red alert for ME
This year, Millions Missing Scotland is raising a red alert. Will you be part of it? #MEAction Scotland volunteers
#MEAction: Congress Is Hearing from Us
#MEAction has been hard at work connecting individuals to their elected officials to talk about the ME/CFS Research Roadmap,
#MEAction Georgia Volunteer, Maggie Boxey, Speaks at TEDxOjai
#MEAction Georgia recently had a huge accomplishment. Maggie Boxey, who is a member of the Georgia State Chapter, a
SOS: Save our Science
People disabled by ME and Long Covid across the UK send out an SOS. It’s time to send out
Why We’re Sending out an SOS this #MillionsMissing
On May 12th, #MEAction and the #MillionsMissing are sending out an SOS to Congress to Save our Support Systems.
Writers Guild Initiative Writing Workshops: Apply Today
#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing
Virtual Interview + Q&A with Stuart Murdoch
Stuart Murdoch, from the band Belle and Sabastian, will be interviewed by #MEAction Minnesota’s State Chapter Leader, Terri L
#MillionsMissing 2025: Sending Out An SOS
For #MillionsMissing 2024, #MEAction is sending out an SOS.
White House Halts Funding for Long COVID Grants
The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.
Women’s History Month
I have been honored as I have watched our volunteers share what makes them powerful and who they see
Join the Fight for Medicaid & Telehealth
We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid
Office of Long COVID at HHS Closing
Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the
Trump Cuts Funding for ME/CFS Centers at Columbia University
We are writing to you with an urgent call to action. The Trump administration has cut funding for the
Volunteer’s Bakery Spreads ME Awareness + Raises Funds
#MEAction Georgia volunteer, Cory Anderson-Sweeney, uses her Baby Deer Bakery to spread awareness about ME and her Cookie of
Long COVID Awareness Day
#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
MEAction Scotland publishes 2024 Impact Statement
Following another busy and productive year, #MEAction Scotland is publishing our 2024 Impact Statement today, which covers the 2024
Why I Joined a Stand Up for Science Rally
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Pillow Crafters Showcase: Healing Themes—The Wildflower Process
#MEAction invites you to experience Pillow Crafters Showcase: Healing Themes—The Wildflower Process on Wednesday, March 26th, 2025 at 11am
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
Press Contact: #MEAction: press@meaction.net
#MEAction Celebrates Powerful Women
#MEAction acknowledges and celebrates the amazing women in our community.
Town Hall Summary
Tuesday’s Town Hall was powerful. It was wonderful to have such thoughtful speakers gather to consider the policies that
#MEAction’s Medical Flashcards Featured by CDC!
#MEAction is excited to announce that the Anki Flashcards we created about ME/CFS and infection-associated diseases have been recommended
Press Release: Cochrane Library Faces Backlash Over ME/CFS Review Cancellation
January 24, 2025 – Cochrane Library has made the shocking decision to abandon an independent analysis of its 2019
A Heart-filled Very Modified Movement Class on 2/14
♥️ Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
#MEAction is raising the alarm about Cochrane Collaboration’s sudden decision to abandon an independent analysis of the 2019 review
The Year Ahead
As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community
#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell
Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video
#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory
Home Test To Treat – Findings Summary
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are
Exploring the Galaxies: Day In the Life of Our Community Engagement & Social Media Manager
Our End of Year Fundraiser: Our Community Is Out of This World is going strong! We have crossed over
We Are Fighting for YOU Everyday! Here’s How…
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but
Exploring the Galaxies: Day In the Life of Our Director U.S Advocacy Director
We only have 17 days left for our End Of Year Fundraiser! Time is flying by! We still have
Why You Should Gift to #MEAction this Season
As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible
Support Keeping Telehealth – Take Action Today!
Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st! Learn More
#MEAction Scotland volunteers in Scottish Parliament
Volunteers from #MEAction Scotland and Long Covid Scotland talked to over 60 MSPs (Members of the Scottish Parliament) at
Exploring the Galaxies: Day In the Life of Activist & Volunteer Coordinator
Our End of Year Fundraiser: Our Community Is Out of This World has been launched into orbit for the
#MEAction Gives Thanks
We have come to the time of year, where we focus on what we are thankful for and what
Community is Key
#MEAction knows COMMUNITY IS KEY! It is through community that we find strength and feel fully seen and heard
#MEAction & Mayo Clinic Projects Continue – New Grant Awarded
Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes
You’re Invited: The Beth Mazur Innovation Prize Fundraiser
You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST.
A Very Modified Movement Class on 11/15
Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm
#MEAction Scotland publishes refreshed strategic priorities
#MEAction Scotland has refreshed and updated its strategic priorities for the period 2024-2026, in anticipation of the expected Scottish
Submit Long COVID Drug Recommendations to RECOVER-TLC!
Last month, RECOVER TLC met at NIH headquarters in Bethesda. The goal was to initiate a drug development strategy
The RECOVER-Treating Long COVID (RECOVER TLC) The Path Forward
The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the
Pillow Writers Anthology, Issue 1: Near-Life Experiences Available Now!
The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This
#MEAction UK’s annual report Oct 2022 – Oct 2023
Download #MEAction UK’s annual report covering what we’ve done in the year Oct 2022 to Oct 2023.Download now (PDF
#MEAction UK’s email/letter to Andrew Gwynne MP
To: Andrew Gwynne, Under Secretary of State for Public Health and Prevention Subject: Treatment of Very Severe ME email
#TeachMETreatME: We Can’t Believe These Numbers
We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and
#TeachMETreatME: Share the Mayo Clinic CME With Your Doctor
We encourage you to share the Mayo Clinic Proceedings Continuing Medical Education (CME) course on ME/CFS with your doctor! It is
#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
Breaking news! #MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department