research Archives

NIH Creates Council to Advance ME Research

September 15, 2018 8 Comments

The National Institutes of Health (NIH) has formed a new council focused on how best to advance research into myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The committee, called the NANDS Council Working Group for ME/CFS Research, will be comprised of scientists, clinicians, representatives from advocacy organizations, and individuals with ME, including a representative from

August 2018 — Research Roundup

September 1, 2018 No Comments

August was a mixed month in the world of ME research, with some truly innovative studies coming out and a few that needed another couple of rounds with the thesis advisor. Some great books and book chapters debuted — and we faced Afflicted, battling not only the usual stigma, but the directors’ framing of chronically ill patients

Announcing Launch of the #MEAction Young Researcher Fellowship

August 21, 2018 8 Comments

#MEAction is thrilled to announce that we are supporting the work of two research assistants working on myalgic encephalomyelitis (ME) for one year as part of our inaugural #MEAction Young Researcher Fellowship. The goal of the fellowship is to grow the field by supporting aspiring research scientists early in their careers and connecting them with

Do You Have MCAS? Fill Out this Survey.

August 20, 2018 No Comments

If you have been diagnosed with mast cell activation syndrome (MCAS), please take a minute to fill out this anonymous survey. The Mastocytosis Society will use data from the survey in its presentations at a National Institutes of Health (NIH) workshop on MCAS in early September. This survey is only open until Saturday, August 25th at 10p.m. EDT /

The heart of ME? Lipkin’s Collaborative Probes the Impact of Exertion

August 14, 2018 1 Comment

Simon McGrath is the author of the ME/CFS Research Review blog. The hallmark symptom of ME/CFS is post-exertional malaise (PEM), a prolonged, grim and disproportionate response to exertion. While Dr W. Ian Lipkin’s NIH-funded Collaborative – the Center for Solutions for ME/CFS – is focusing primarily on how problems in patients’ gut microbiomes might drive the

The Microbiome Hypothesis: Lipkin’s Collaborative, Part 1

August 11, 2018 2 Comments

Author of the ME/CFS Research Review blog, Simon McGrath, has written an article about Dr W. Ian Lipkin’s theory that the body’s response to changes in the gut could be what’s driving ME/CFS for at least some patients. A gut reaction is the problem in ME/CFS – that’s the main idea being pursued by Dr W. Ian

July 2018 — Research Roundup

August 8, 2018 8 Comments

July was a big month for scientific research in ME! Many of the most well-known researchers and clinicians had papers this month including Klimas, Lipkin, Hornig, Levin, Peterson, Montoya, Julie Newton, Broderick, and Marshall-Gradisnik. There were studies in epigenetics, NK cell function, the HPA axis, robots for schoolchildren with ME, and a few interesting critiques

Learning about ME at the Dysautonomia Conference

July 22, 2018 2 Comments

#MEAction sent two representatives, Beth Mazur and Jaime Seltzer, to attend the 2018 Dysautonomia International Conference in Nashville last month. This was an opportunity for our community to join forces and gain insight regarding the commonalities in triggers, symptoms, diagnoses, and methods of treatment between ME and dysautonomia. Dysautonomia refers to diseases that affect the

Ron Davis Receives $2.5 Million Grant from NIH

July 13, 2018 1 Comment

Dr Ron Davis and his team at the Stanford Genome Technology Center have received a large research grant from the National Institutes of Health (NIH) that will fund research for 5 years at $500,000 a year and will involve 15 collaborators, 9 of which have never worked in the ME/CFS field before. The research will focus on

U.S. – Center for Solutions for ME/CFS Seeks Applicants for Community Advisory Committee

June 22, 2018 No Comments

The Center for Solutions for ME/CFS is seeking applications for the Community Advisory Committee. The deadline is Monday, July 9. Apply here: CAC application, available in Google Forms. The Center for Solutions for ME/CFS (CfS for ME/CFS) is a multi-institutional, inter-disciplinary research center dedicated to understanding the biology of ME/CFS, and developing diagnostic tests and methods for

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