UK COVID-19 Vaccine Priority and Template Letters
February 12, 2021
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The JCVI make it clear that the vaccine priority list is not exhaustive and clinical judgement should be applied for people with ME.
Tag: MECFS
#MEAction’s Postcards to Doctors is an Unprecedented Success!
August 30, 2019
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#MEAction’s Postcards to Doctors initiative has been successful beyond our wildest hopes! Since August 1, we’ve received requests for more than 3,500 postcards from hundreds of individuals and groups. People from all over the United States have signed up to write to their clinicians asking them to take #MEAction’s CME program – we’ve sent out
#MEAction Responds to NIH
December 21, 2018
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As many of you know, #MEAction activists for myalgic encephalomyelitis (ME) met with the director of the National Institutes of Health (NIH), Dr. Francis Collins, on December 7 to discuss accelerating research in order to more rapidly provide diagnostics and treatments to people with ME. To read about the details of the meeting, click here.
Australia Announces a New ME/CFS Advisory Committee
December 6, 2017
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Australia’s National Health and Medical Research Council (NHMRC), the Australian equivalent of the NIH, has announced the establishment of an ME/CFS Advisory Committee to advise NHMRC’s CEO, Professor Anne Kelso, on current needs for research into ME/CFS, as well as clinical guidance on the diagnosis and treatment of the illness.
Action for M.E announces research
July 17, 2017
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UK charity Action for M.E has announced that they are funding two new research studies, totalling £42,000
Trifecta for ME awareness in Knoxville, Tennessee
June 29, 2017
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Trifecta in Knoxville, Tennessee In an example of Knoxville leading the way for Tennessee, Mayor Madeline Rogero and the Knoxville City Council have provided an ME/CFS Proclamation and Resolution in honor of May 12th, International ME/CFS Awareness Day. Supporting the global movement of lighting bridges and buildings in the ME blue awareness color, Knoxville’s Henley
Voices from Sacramento: Janet Dafoe and Ashley Haugen
June 7, 2017
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Some of you may know Dr. Janet Dafoe and her daughter Ashley Haugen through their tireless advocacy work for ME. Dr. Dafoe’s son and Ashley’s brother, Whitney Dafoe, has severe ME, and is the impetus behind their efforts to raise funding, raise awareness, and raise hell. These statements were read at the Sacramento California rally on June 2, 2017.
Passionate Pragmatist: Carol Head and the Fight for ME/CFS Equality: The SMCI Pt. I
May 31, 2017
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One of my deeply held personal values is that ALL people must be treated respectfully…I have found that respectful, highly knowledgeable, forceful advocacy language that expresses the desperate needs of our community is the most effective. But please do not mistake my professional, respectful demeanor as anything less than a cover for my righteous indignation and outrage at the inhumanity of our community’s treatment” Carol Head
CA Senate will Vote on Resolution for ME/CFS Thursday – Call your Senator!
May 14, 2017
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California – A resolution to proclaim May as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Awareness (ME/CFS) Month will go before the California Senate this Thursday. Now, is a great time to educate your California Senator about ME/CFS, and let them know that you are a constituent who cares about this cause. Even though the resolution (which
Contact your local journalist about #BedFest
May 3, 2017
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Invite a journalist to cover the story of #BedFest in which artists with Myalgic Encephalomyelitis from all over the world have come together – many of them bed or homebound – to express themselves and showcase their music, art and poetry. Share the #BedFest website with your journalist – a living gallery and concert hall of art by people with