MECFS Archives

Patient-friendly version of Edwards et al.'s assessment of ME/CFS research

May 12, 2016 No Comments

ME/CFS patient and science blogger Simon McGrath has produced a patient-friendly version of a recent peer-reviewed editorial on the disease that appeared in the science journal Fatigue: Biomedicine, Health & Behavior. The article, titled The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem, became Fatigue’s most-read paper ever within a week of publication, with over 3700 views as

Online TV show to discuss ME/CFS Centers of Excellence

May 10, 2016 No Comments

Dr Kenneth J. Friedman will discuss the CFS Advisory Committee’s (CFSAC’s) upcoming proposal for ME/CFS Centers of Excellence and will explain what patients can do to make such centers a reality, in an online TV panel show on May 12. The one-hour show, which covers ME/CFS and Lyme Disease, will be broadcast on Channel 17

Attend the Protest Meeting Tomorrow

May 10, 2016 2 Comments

These demands were originally intended for a protest in Washington D.C. alone, but over time, #MillionsMissing has grown into a national, multi-city protest. With that in mind, we will have an open community meeting on Wed. May 11th, 2 pm EDT to discuss the demands and receive input from the community. We will also be

Jason study compares housebound and non-housebound patients

May 9, 2016 7 Comments

A new study was published recently in the journal Chronic Illness, entitled Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome by Pendergrast et al. The authors of the paper included the well-known ME/CFS researchers Julia L. Newton and Leonard Jason. Newton is most often recognized for her studies in muscular function in

Download the #MillionsMissing Twibbon

May 9, 2016 1 Comment

Announcing the #MillionsMissing Twibbon — now it’s easier than ever to add the #MillionsMissing filter to your photo on Facebook and Twitter! All it takes is the click of a button. The page also provides: easy-to-use tweets and Facebook posts announcing your support for the #MillionsMissing protest a place to create an email about the

Send your shoes to #MillionsMissing by Thursday

May 8, 2016 7 Comments

#MillionsMissing is calling for some literal boots on the ground, and the deadline is fast approaching. If you want your shoes to be displayed at the U.S. main protest in Washington D.C., your shoes must be postmarked no later than May 12. If you send your shoes past this date, they may be used for

Latest in Solve webinar series

May 8, 2016 No Comments

The latest webinars in Solve ME/CFS Initiative’s 2016 series will soon take place, with Dr Jarred Younger speaking on 19 May and Dr Jose Montoya on 16 June. Dr Younger is Associate Professor in the Departments of Psychology, Anesthesiology and Rheumatology at the University of Alabama at Birmingham, and Director of the Neuroinflammation, Pain and

Support Tanya's life-saving fundraiser

May 7, 2016 No Comments

Tanya is a remarkable young woman in desperate need of life-saving financial support. Please visit her fundraising site and share widely.

Patients send Norwegian Research Council over 700 research ideas

May 6, 2016 1 Comment

The Norwegian Research Council has announced that it received 737 research proposals from ME/CFS patients and their families in response to a call for ideas in April. Patients and others were invited to send in their ideas by May 3, using a short online form. In the call for proposals in April, Mr Hallén had

Donate to our play about ME/CFS

May 6, 2016 No Comments

Gemma Climbs Her Mountain uses both my story and the testimony of over 200 patients to convey the awful reality of living with this disease.

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