MECFS Archives

#MEAction and Long COVID Justice Issue Press Statement about NIH Failure of Long COVID

August 23, 2023 No Comments

#MEAction and Long COVID Justice issued a press statement yesterday about our communities’ deep concerns regarding the rollout of RECOVER’s clinical trials for Long COVID. As studies show half of the Long COVID community meets the diagnostic criteria for ME/CFS – and our core symptoms overlap – RECOVER’s research has major implications for our community.

Photo of staff members smiling at camera on a zoom call.

#MEAction’s Summer Work Heats Up

August 16, 2023 No Comments

Halfway through summer, we have so much to report about our immense, day-to-day work advocating for M.E., for you, and for each other. On the medical front, our ongoing, grant-funded project with Mayo Clinic Rochester continues to transform medical education at Mayo. Together, we have updated the ME/CFS homepage, written a Concise Clinical Review article that will

A United States Senate committee hearing room

#MEAction Calls for ME & Long COVID to be Part of COVID-19 Task Force

July 25, 2023 No Comments

Urge Congress to hold our federal health and research agencies accountable for ME & Long COVID.

Why We Keep Telling the Story of ME to the Press

June 6, 2023 No Comments

Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the

Dark image of person lying down with red blur across their head

#MEAction Response to NY Magazine’s Egregious Article on ME and Long COVID

November 10, 2022 5 Comments

#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.

Interview with #MillionsMissing France: Rally in Bourges

October 26, 2022 No Comments

#MillionsMissing France has been busy.

financial chart with line rising in green interrupted by coronovirus after which line goes down in red

Long COVID’s U.S. Economic Impact Est. $140-$600 Billion Annually

October 7, 2022 No Comments

Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.

caring african-american medical nurse with hand on shoulder of a black senior patient in headwrap in office

New Diagnostic Codes for ME/CFS in the US ICD-10-CM

October 6, 2022 1 Comment

Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records

#MillionsMissing Press Hits are Rolling In!

September 20, 2022 No Comments

The press hits are rolling in! The media showed up in a big way yesterday to cover our #MillionsMissing protest in front of the White House. One day after President Biden declared the “pandemic is over,” our community was at the gates of the White House to send Biden a message that a pandemic of chronic

People lying on the sidewalk in front of the white house

Protest at White House to Tell President Biden “Pandemic Is NOT Over”

September 19, 2022 2 Comments

Protesters disabled by Long COVID and myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) lay down on the White House sidewalk today risking arrest to tell President Biden that the pandemic is not over, and that millions are being disabled from post-viral disease, including Long COVID and ME/CFS.

Tag: MECFS