Five professors of science and mathematics, including Professor Ron Davis of Stanford University, have written to PLoS One demanding the correction of an “inaccurate claim” central to a PACE trial paper on cost-effectiveness that was published in the journal in 2012. Referring to a series of articles by Dr. David Tuller criticizing the PACE trial,
A Swedish ME/CFS charity has slammed the attitude of the country’s government towards the disease. In an interview with British ME/CFS fundraiser Mike Harley, the charity’s representatives stated, “The government appear to take no interest at all in this disease, which means that there isn’t any serious commitment, no sense of urgency whatsoever.” “There currently
Two studies at the University of NSW are using the ‘potentially harmful’ 2002 Australian guidelines. It is time for Australia to adopt the International Consensus Criteria.
‘Chronic fatigue syndrome chronically underfunded’, Australian community radio current affairs program.
Professor James Coyne told a packed audience at Belfast Castle in Northern Ireland on Sunday that the PACE trial was “bad science” that was “being badly misrepresented by the investigators”, resulting in “clear harm to patients”. The PACE authors had, he said, changed their study endpoints after peeking at the data and had suppressed analyses
David Tuller has published a new article in the Health Affairs blog that summarizes the issues with the conduct of the PACE trial and also examines the ways in which PACE and other studies have impacted the attitudes of doctors and the clinical guidelines used by doctors to treat patients. Tuller’s series of articles reporting
On February 3, 2016, a group of patient organizations and advocates (including #MEAction) sent a followup letter to the Agency for Healthcare Research and Quality (AHRQ) further detailing concerns with the 2015 AHRQ Evidence Review and reiterating their request, originally made in November 2015, to reanalyze the conclusions of AHRQ’s Evidence Review in light of
Geocentrism and PACE – both on the wrong side of science Thank you to Ella Peregrine for kindly allowing us to republish her facebook post on #MEAction Recently, David Tuller, James Coyne, Vincent Racaniello, and some other non-invested scientists and writers have been looking more carefully into the claims and relative lack of transparency of the
Tell our charities: QMUL must release PACE data I need your help. The UK Information Commissioner recently ruled that Queen Mary University of London (QMUL) must release PACE trial data requested by a patient under the Freedom of Information Act. However, QMUL appealed. The appeal will soon be heard at a tribunal. Meanwhile the PACE
I’ve been inspired to write by Lucibee’s recent blogpost about the PACE trial (https://lucibee.wordpress.com/2016/01/27/my-thoughts-about-the-pace-trial/), She raises an important point about how patients can sometimes be received for reporting any sort of improvement from CBT or GET.
