CFSAC Archives

HHS publishes revised responses to CFSAC recommendations about NIH initiative

March 30, 2016 1 Comment

After responding negatively to most of CFSAC’s recommendations for the ME/CFS research program, the NIH has now revised many of their responses to better address CFSAC’s requests. Following the announcement of the NIH’s new ME/CFS research program, the Chronic Fatigue Syndrome Advisory Committee (CFSAC) submitted formal recommendations to the agency about how the program should be structured. These recommendations

Solve ME/CFS Initiative Grades HHS on CFSAC Response

January 22, 2016 No Comments

Solve ME/CFS Initiative Grades HHS on CFSAC Response The Solve ME/CFS Initiative has created a report card for HHS’ response to the recommendations made by the Chronic Fatigue Syndrome Advisory Committee (CFSAC) after its August meeting. The grades the organization gave on the HHS response to the 13 CFSAC recommendations range from A- (one) to F (four).

CFSAC – to be or not to be

September 22, 2015 No Comments

CFSAC- Let’s Take Action ME community members were caught off guard when the proposed 2016 Senate appropriations bill zeroed out CDC funding for CFS research. Several advocates scrambled to address this and their efforts to be heard appear to have paid off. But scrambling is not something ME advocates can, or should do. Health- and resource-

Tag: CFSAC

HHS publishes revised responses to CFSAC recommendations about NIH initiative

Solve ME/CFS Initiative Grades HHS on CFSAC Response

CFSAC – to be or not to be