CBT Archives

“The treatment of ME has been Dickensian” – NICE’s roundtable on the ME/CFS guideline

October 19, 2021 17 Comments

After NICE’s roundtable, Janet Sylvester tells us: “I felt this was a positive meeting. There were large areas of agreement from all attendees, including all acknowledging the terrible experiences people with ME have had to endure. Together, the representatives from ME patient organisations were able to strongly get across the reality for people living with ME. I’m optimistic the guidelines will be published.”

Over 7K Sign #MEAction’s Response to Flawed CDC Review

August 16, 2021 1 Comment

Over 7K sign #MEAction’s response to CDC

The Effects of Graded Exercise Therapy and Positive Thinking on a Young Girl with ME

January 23, 2019 9 Comments

Listen to the article: Exercise protocols prescribed for myalgic encephalomyelitis (ME) were powerful enough for Cherry to ignore the physiological realities of her disease. Cherry is now 100 percent bedridden. When 16-year-old Cherry from North London began the treatment prescribed for her myalgic encephalomyelitis (ME) in 2013, she was able to walk to her local

Reanalysis of PACE Trial Shows GET and CBT are Ineffective

March 23, 2018 No Comments

What would have been the outcome of the PACE trial had the investigators followed its original protocol instead of relaxing the criteria for “recovery” as the trial progressed? Researchers have just published a paper seeking to answer this question in a reanalysis of the PACE trial based on its original protocol. The authors concluded that

PACE Trial 'medical scandal' Sparks UK Parliament Debate

February 20, 2018 1 Comment

Members of Parliament heard about the flaws of the PACE Trial – and its devastating effects on people with Myalgic Encephalomyelitis (ME) – in a Westminster Hall debate today. Twenty-six MPs attended the debate.

The Failure of Clinical Guidance for People with ME

February 5, 2018 8 Comments

ME advocate Mary Dimmock has written a comprehensive report about the flawed science that led to the recommendation of cognitive behavioral therapy (CBT) and graded exercise therapy (GET) for people with Myalgic Encephalomyelitis. The patient community has long reported these treatments to be ineffective and harmful, and, yet, health societies and governments across the world

Tuller on PACE Investigation Plans: Not Beholden to Anyone

June 8, 2017 5 Comments

#MEAction sat down with David Tuller recently for a wide-ranging discussion about the crowdfunding effort to help him continue his PACE investigations, the devastating stories he has heard from patients around the world, the poor media coverage of the PACE Trial flaws, and the ideal end result of all of the work he is doing. David Tuller

Australia: government refuses to stop funding trial focused on GET/CBT

February 28, 2017 No Comments

An Australian university is trialling a program to train health professionals in administering graded exercise therapy and cognitive behavioural therapy to roll it out nationally and internationally, despite the evidence of harm. Here is the response to a petition to ask them to stop.

How an Australian’s FOI request busted open a UK science scandal

February 28, 2017 No Comments

The 2011 PACE trial examined the effect of graded exercise therapy and cognitive behavioural therapy against standard medical care, but refused to share their data.
West Australian Alem Matthees filed a UK Freedom of Information Act. The ruling released the data and further examination found glaring problems with the study.

US: Family testifies about CDC's harmful recommendations at CFSAC

January 26, 2017 5 Comments

A member of the Shaw family reads their testimony during the comment period at the January CFSAC meeting: Good afternoon. I have had untreated ME/CFS for 38 years. Our testimony today is on the topic of the Center for Diseases Control’s (CDC) CFS group. The 2015 National Academy of Medicine report characterizes post-exertional malaise, or

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