The CFS Advisory Committee meeting included reports from federal agencies and substantive recommendations from subcommittees. But public comments were a reminder that we are running out of time.
An AIDS activist and member of ACT UP/NY who has been newly diagnosed with ME has criticized US government health bodies for repeating AIDS history by “doing nothing” for millions of ME patients. Terri Wilder, from New York, provided testimony at the CFS Advisory Committee (CFSAC) meeting on 18 May. Terri stated that her testimony
Recently, I was sitting in my floor sorting through old shoes. I came across the shoe in the picture. Its mate is missing, as is so much of my former life. I got all teary-eyed and found myself just touching the shoe ,and as my fingers ran over the sides my memories came flooding back.
I’m running my sixth EU marathon in Stockholm, Sweden on June 4th for biomedical ME research projects via Invest In ME (UK) and would love to meet up with anyone able to come cheer me on or meet for photos and a chat. I’m running to try to help one of my oldest friends, Ian,
Hi, everyone! This is more of an opinion piece, though it does have to do with #MillionsMissing. As you might imagine, we will really need healthy people to come out and support us: to help with setup and cleanup; to hand out water and food; and to raise their voices alongside our own. I wrote
This M.E. Awareness Month, our is simple: don’t ignore M.E. To spread this message, Action for M.E. launched three films as part of M.E. Awareness Week. Starring Sharon and Douglas, who have M.E., Sharon’s partner Connor, and our medical advisers Dr Gregor Purdie and Prof Julia Newton, each focuses on a different aspect of M.E. and its impact.
Professor Vincent Racianello of Columbia University has said of the PACE trial controversy, “I think they are going to ignore, obfuscate, and give their usual responses until we are all dead. I don’t have hope that the PACE authors, or Lancet, will respond in any meaningful way until there is more of an outcry.” Racianello’s
The idea behind Walk for ME is that friends and family of an ME sufferer do a sponsored walk, run or swim on their behalf, hence the name Walk for ME or Walk for me.
Dr Kenneth J. Friedman will discuss the CFS Advisory Committee’s (CFSAC’s) upcoming proposal for ME/CFS Centers of Excellence and will explain what patients can do to make such centers a reality, in an online TV panel show on May 12. The one-hour show, which covers ME/CFS and Lyme Disease, will be broadcast on Channel 17
Announcing the #MillionsMissing Twibbon — now it’s easier than ever to add the #MillionsMissing filter to your photo on Facebook and Twitter! All it takes is the click of a button. The page also provides: easy-to-use tweets and Facebook posts announcing your support for the #MillionsMissing protest a place to create an email about the
