Tag: advocacy

Send your ME/CFS story on a 240-km journey

On Saturday, 7 May 2016, Mike Sutton will begin a 240-km (150-mi) journey along the Camino del Norte to raise awareness and generate more funding for ME/CFS. Mike is dedicating each day of the ten-day walk to an ME/CFS sufferer, using the hike as a platform to tell their story, share a picture of them during

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10 things you can do for #MillionsMissing with limited spoons

The #MillionsMissing protest is full-steam-ahead: we’re mobilizing in Washington D.C., Seattle, San Fransisco, and Dallas; we’re revving up our engines in other cities all across the United States, our friends in other countries have pitched in, and the enthusiasm has reached an all-time high.  However, if you’re sitting at your computer holding five spoons for

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The UK CFS/ME Research Collaborative to livestream AGM on 27 April

The 2016 Annual General Meeting of the UK CFS/ME Research Collaborative (CMRC) will be livestreamed on Wednesday 27 April, from 2.45 pm to 3.30 pm British Summer Time. Viewers must preregister. The agenda of the AGM is as follows: Welcome and apologies Annual report 2014-15 Charter revisions/approval Plans for 2015-16 Membership of the Board Any other business

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#MEAction welcomes our new deputy community organizer

Paige is a recent graduate from NC State University with a degree in biomedical engineering. She was diagnosed with POTS five years ago and has been inspired to make a difference for those living with chronic illness. Paige started a disability transportation service at her university and plans to use those collaborative skills as Deputy

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