Press Hits

• Politiebureau licht blauw op voor ziekte ME, Dagblad 101
• Barendrecht licht blauw op voor de ziekte ME (Barendrecht light blue for the disease ME), Barendrechts
• Barendrecht licht zaterdag 12 mei blauw op voor de ziekte ME (Barendrecht light Saturday, may 12, blue for the disease ME), Barendrecht NU
• Erasmusbrug en Euromast kleuren blauw voor Wereld ME-dag (Erasmus bridge and Euromast tower blue for World ME-day), RTV Rijnmond
• DOT Groningen licht blauw op voor de ziekte ME (DOT Groningen light blue for the disease ME), Groningen

• “ME-patiënten plaatsen duizenden schoenen op het Plein,” Den Haag FM, Sept. 26 2016

• “Stille schoenenparade vóór Tweede Kamer,” De Telegraaf, Sept. 27 2016

• “Tientallen lege schoenen tegenover Tweede Kamer,” dichtbij, 27 September 2016

• “Plein vol met schoenen voor een betere behandeling ziekte ME,” AD, 27 September 2016
• “ME-patienten demonstreren op Haagse Plein voor erkenning,” 27 September 2016

• “Hope for ME: Co Down woman’s campaign for the thousands living with chronic fatigue syndrome,” Irish News
• “Demonstrators at Stormont urge more research into chronic disease ME,” The Irish News, 28 September 2016
• “ME sufferers step up drive for more help,” Belfast Telegraph, 28 September 2017

• “Jeg har mistet kontroll over livet mitt. Jeg sitter bare på sidelinjen og ser at ting passerer forbi,” Haugesunds Avis
• “Markerte ME-dagen i Stavanger sentrum: – Jeg er fortvilet over hvor stille dette fagfeltet har vært,” – Stavanger Aftenblad
• “ME-dagen markeres,” – NRK Nyhetsmorgen
• ​”Stor markering i Stavanger på ME-dagen” – Dagsavisen (2018)
• “Sko for myalgisk encefalomyelitt” – NRK Rogaland (2018)

• “Skoene til de som ikke kan være med” – Stavanger Aftenblad (2018)

• “Norges største samling på ME-dagen,” (Norway’s biggest event on the ME-day), TV Vest
• “Skoene til de som ikke kan være med,” Aftenbladet
• “ME: – De meldes til barnevernet for omsorgssvikt,” Side Two, Sept. 27 2016

• “Ministr zdravotnictví Adam Vojtěch přijal od pacientů s ME/CFS pozvání na akci Millions Missing,” ParlamentníListy.cz

• “Shoes for a Syndrome,” Sandton Chronicle, Sept. 27 2016

• “Kräver jämlik vård för ME-sjuka,” Swedish radio, SR P4
• “Elenor, 44, lever med ME: ”En skitsjukdom,” Newspaper GT
• “ME Day – See the nice symbol for all ME patients”  TV4
• “Därför ställs tomma skor ut i Sundsvall i en stor aktion (Therefore, empty shoes are put out in Sundsvall in a big action),” Sundsvalls Tidning
• “Ställer ut skor för att uppmärksamma mystiska sjukdomen (Set out the shoes to pay attention to mysterious illness),” Aftonbladet

National

• “Millions of Missing People are about to Reappear for a Week,” The Canary
• “A Heavy Weight to Carry,” Teach Wire
• “Glasgow’s Belle & Sebastian Frontman Tells of Illness Battle,” Evening Times
• “Virtual Pilgrimage – the road less travelled,” Church Times
• “Things you only know if You’re living with M.E.,”  Grazia UK magazine
• “Chronic Fatigue Syndrome Sufferer Reveals Crippling Truth Of Condition, It’s Not ‘Just Laziness,” Unilad
• “The important reason why people are leaving shoes around cities” Marie Claire UK
• “ME Protesters Gather in London” BBC
• “Gateshead Teenager Calls for Better ME understanding” BBC
• “Campaigners call for more treatment for those living with ME” ITV
• “Belle and Sebastian lead singer Stuart Murdoch opens up on 30-year battle with ME,” The Times UK
• Elderly ME sufferer from Clayhall to raise awareness of devastating effects of illness through a virtual protest,The Guardian

Birmingham

• “This illness is sucking the life out of millions of people – how to spot it and why it happens,” The Birmingham Mail
• “Raising Profile of ME Illness,” Worchester News

Brighton

• “Mothers unite to raise awareness for neurological illness,” The Argus

Bristol

• Brief radio interview with #MillionsMissing organizer (minute 58), BBC Radio Bristol
• “This is why there’s so many abandoned shoes on College Green,” Bristol Post
• “#MillionsMissing: the campaign for ME equality,” The Bristol Cable
• “100 pairs of shoes used to make poignant protest in Bristol City Center,” Bristol Post, Sept 27 2016
• “Silent shoe protest at lack of funding for ME,” ITV Report (Bristol), Sept. 27 2016
• “The truth about living with M.E.- 3 women’s stories,” BBC Bristol

Cardiff

• BBC Wales Today
• “A protest for the rights of people with M.E is coming to Cardiff,” Wales Online, Sept 21 2016
• #CardiffNews

Coventry

• “ME sufferers speak out about their battle with the ‘invisible illness‘,” Leamington Observer

Durham

• “Life with ME is a “long and hard journey” says 16-year-old Hope Simpson, of Bishop Auckland,” The Northern Echo

East Yorkshire

• “As part of ME Awareness week, Zoe chats with her about #Millionsmissing,” Hull Kingston Radio

Glasgow

• “Stuart Murdoch: George Square event aims to raise awareness of ME,” Evening Times
• “Belle & Sebastian frontman Stuart Murdoch on ME battle,” Herald Scotland

Gloucester

• “Adrenaline junkie’ Gloucester mum left unable to wash herself or walk without stick by ME disease,” Gloucestershire Live

Hull

• “Woman bedbound for two years says doctors told her chronic illness was ‘all in her head,” Daily Mail

Leeds

• “Leeds to host #MillionsMissing protest to highlight plight of people with chronic fatigue condition ME,” Yorkshire Evening Post
• “#MillionsMissing protest held in Leeds city centre to draw attention to the plight of ME sufferers,” Yorkshire Evening Post
• “Meet the inspirational woman behind the Millions Missing Leeds campaign,” Female First

Liverpool

• “Hairdresser who loved life says he feared he would die after developing ‘tightrope’ condition,” Liverpool Echo

London

• Camberwell ME Sufferer Backs Campaign for More Research Funding as she tells of Life as one of the ‘Millions Missing’” Southwark News
• “I was humbled by the ‘millions missing’ yesterday. Now it’s time for unrest,” The Canary
• “On Saturday ‘millions’ of ‘missing’ people will reappear for the day,” The Canary
• “Chronic fatigue treatment inadequate, say campaigners,” Channel 4 News
• Bob Dylan’s ‘Blowin’ in the Wind’ has been re-imagined for the ‘millions missing’: Part One, Part Two,” The Canary
• “St Albans ME group uses shoes to raise awareness as part of global campaign,” Herts Advertiser
• #MillionsMissing: Sea of empty shoes left outside Department of Health in global ME protest, The Evening Standard, London

Manchester

• “Millions Missing Rally Returns to Manchester for ME,” Salford Star
• “Empty shoes’ raise awareness of ME,” ITV
• “Manchester protest calls for funding boost for ME sufferers,” Planet Radio
• “Millions Missing ME Rally in Manchester Calls for Proper Funded Research and Treatment,” Salford Star

Morecambe

• “Demonstration at Eric Morecambe statue will raise awareness of ME sufferers,” Lancaster Guardian

Norwich

• “I have a devastating illness, so why do doctors doubt my struggles?” Easter Daily Press
• Empty shoes create poignant image of those affected by ME, Eastern Daily Press

Nottingham

• BBC Radio Nottingham, Sept. 19 2016
• BBC East Midlands
• BBC1

Opinion

• “ME affects four times as many men as women. Is that why we’re still disbelieved?” Guardian, 27 Sep 2016

Oxford

• BBC TV South
• Rows of empty shoes outside the Radcliffe Camera, Oxford will represent Chronic Fatigue Syndrome sufferers at Millions Missing,” The Oxford Times, Sept. 27 2016

Scotland

• “Belle and Sebastian singer in ME rallying call,” The Hearld
• “Belle and Sebastian singer in ME protest,” The Scotsman
• “Kevan Christie: Stereotyping still prevents ME from being taken seriously,” The Scotsman, May 11, 2017
• “ME sufferers seek help to defeat burden of chronic fatigue,” The Scotsman, May 6, 2017
• “Why are you ignoring ME, Ms Robison?” Edinburgh News, May 10, 2017
• “Crippled by M.E but doctors say it’s MY fault,” Daily Record, May 10, 2017

Sheffield

• “The missing millions that spend their life hidden with ME,” The Sheffield Telegraph
• “These are the Sheffield landmarks that will be turning blue to mark ME Awareness Week,” The Star
• “Thousands Join Together for MillionsMissing – a Global Week of Demonstrations for ME Health Equality,” North Manchester FM 106.6
• “Sheffield Landmarks are Set to Turn Blue this Weekend,” Shef News
• “#MillionsMissing: ME health equality action,” Shef News
• “Millions Missing campaign to highlight ME related isolation,” Sheffield Live
• “Representing the Millions Missing in Sheffield,” The Medium

Southampton

• “Millions Missing Campaign Comes to Southampton to Highlight ME Problems,” Daily Echo
• “We deserve to be looked at as equal,” Daily Echo
• “What is #MillionsMissing?,” Health Watch
• “Thousands to unite in Southampton for the #MissingMillions,” Daily Echo
• Breakfast radio show (starts 0:35:00), BBC Radion Solent
• Breakfast radio show (starts 1:11:02), BBC Radion Solent
• “ME/CFS Millions Missing Southampton 2018,” YouTube

Sussex

• “Woman’s life blighted by devastating scourge of ME,” Sussex Express

Wales

• ‘Humanitarian crisis’ for ME sufferers in Wales,” BBC News Wales
• “Campaigners call for more treatment for those living with ME,” ITV News

Winchcombe

• “Something a little bit different: ME/CFS chronic fatigue syndrome (interviews w/patients at 25:00),” Radio Winchcombe

Worchester

• “Campaigners call for more research into ME,” Worchester News

National 

• “He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son,” CNN
• “Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Protests Tuesday,” National Pain Report
• “How 1 Filmmaker is Using Her Illness to Inspire and Empower Others” INC Magazine
• “What is Myalgic Encephalomyeltis? The “Millions Missing” Hashtag is Raising awareness of the chronic illness through social media” Bustle
• “The hidden ME too: 100,000 people in Illinois could suffer from debilitating disease” Chicago Reader
• “ME/CFS Patients and Allies Are Rallying Worldwide to Demand Better Treatment,” The Mighty
• “Using lessons from HIV activism,” The Body

• “Protesters Demand Increased Funding for ME/CFS Research,” US News & World Report, Sept. 28 2016

• “Myalgic Encephalomyelitis Rallys Scheduled Next Week, Calls For Increased Government Funding For Research,” The Global Dispatch, Sept. 21, 2016

• “Timely MillionsMisssing Protest Demands Funding For Chronic Fatigue Syndrome (ME/CFS),” ProHealth, Sept. 26 2016

• “Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Protests Tuesday,” National Pain Report, Sept. 27 2016

• “ME sufferers highlight lack of support and funding,” OnMedica, Sept. 27 2016

• Tethered to my bed, I’m still fighting the stigma around “chronic fatigue”, STAT, a national publication of Boston Globe Media

• Also picked up by The Week, entitled, I got mono in college. Decades later, I still haven’t recovered.

• Also picked up by Business Insider, entitled, A disease that causes debilitating exhaustion affects more than a million Americans, and no one’s addressing it

• Chronic Fatigue Patients Take to the Streets: Global protest highlights demands for more research, physician education, MedPage Today

• The Pacifica Evening News, 05.25.16 – 6:00pm, (36:00-38:55) KFPA Radio, San Francisco Bay Area

• Broadbent: Chronic Fatigue Syndrome victims, 2.1 million in U.S., need your help, San Jose Mercury News, San Francisco Bay Area

• Disabled Former Teacher Campaigns for Disease Research JD News, (Jacksonville, NC)

• #MillionsMissing Protest: Highlighting an Illness Whose Toll is Unseen, Our Bodies Ourselves

• Will You Take My Disease Seriously Now?, The Valley Advocate (Boston, MA area)

California

• “It’s like the flu, but it’s not: Today is International ME-CFS Awareness Day,” The Fresno Bee
• “A Mystery Disease That Robs Vitality,” Santa Barbara Independent

Colorado

• “Understanding Chronic Fatigue Syndrome/ME – #MillionsMissing,” KGNU News

Florida

• “Chronic fatigue syndrome puts Central Florida woman on a mission to help,” Orlando Sentinel

Illinois

• Dozens Rally To Bring Attention To Incurable Disease, CBS Chicago, Sept. 27 2016
• Chicago Residents To Protest Lack Of Support For Those Suffering With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, The Beachwood Reporter (Chicago), Sept. 26 2016
• WBBM (CBS Radio, Chicago IL)

Massachusetts

• “Chronic Fatigue Patients Fight for Research, Funding, and Recognition,” Boston Magazine, September 27th, 2016
• WBEZ-FM: (CBS Radio, Boston MA), Sept. 26 2016
• WWLP Channel 22

• Sapped of strength and stricken with pain and confusion those with chronic fatigue syndrome seek help with an elusive illness, Daily Hampshire Gazette, Dec. 19 2016

Michigan

• “Local Man Testifies To Senate Panel About ME/CFS,” WHMI
• WLNS-TV (CBS, Lansing MI): News at 5
• WLNS-TV (CBS, Lansing MI): News at 5, News at 6
• WLIX-TV (NBC, Lansing MI)

Minnesota

• “New Hope woman with fatigue condition honors fellow ‘millions missing’ from jobs, social spheres,” Sun Post

New York

• Radio: “The Mid-week Wrap-up,” WKZE
• “More than a million Americans are suffering from a debilitating disease that makes simple tasks impossible — and they’re fed up with being ignored,” Business Insider

Opinion

• “Congress must help the MillionsMissing,” The Hill Blog, Sept. 23, 2016

• “Life-draining disease needs research,” Green Bay Press Gazette, Sept. 23, 2016

• “MillionsMissing — A Hidden Epidemic and a Day of Action,” Inside Sources, Sept 27 2016

  Also picked up by the Courier-Post (a USA Today network newspaper in New Jersey), titled, “A day of action for a hidden epidemic, Sept. 26 2016

  Also picked up by the Huffington Post, titled “MillionsMissing: A Hidden Epidemic and a Day of Action,” Sept. 28 2016

Pennsylvania

• Pittsburgh City Paper, in-depth story that includes interviews with Ron Davis and Mary Dimmock
• WPGH-TV (FOX, Pittsburgh PA): News at 10
• WPXI 11 News: 30 second clip on the 5:30 pm news.
• NPR: WESA-FM.

South Carolina

• “State Lawmakers Declaring May as Myalgic Encephalomyelitis ‘ME’ Awareness Month,” ABC Columbia
• City Proclamation Declares May As Myalgic Encephalomyelitis (ME) Awareness Month, The Daniel Island News
• “40,000 people in SC may have this fatigue-causing illness. It’s been overlooked for years,” The Post & Courier

Utah

• Chronic Fatigue, Good4Utah

Washington, D.C. 

• “#Millionsmissing ME/CFS Protest in Washington, D.C.,” Inspire  

Wisconsin

• Kenosha News
• “Campaign raises awareness for disease ‘ignored by public health authorities,’” WEAU News