Respond to the Patient Safety Commissioner role consultation
May 18, 2021
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Scottish Action Alert! Use your voice to make a difference and respond to this goverment consultation.
Search Results for: exercise – Page 8
Telebriefing was a success!
March 29, 2021
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We were thrilled at the outcome of the #MEAction press briefing last week where we invited a panel of experts to discuss the intersection between long COVID and myalgic encephalomyelitis (ME) to the media. The panelists made it crystal clear that a subset of long haulers are meeting the criteria for ME, and that it
NHS England omits advice to apply clinical judgement re vaccine
March 5, 2021
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It has come to light that a letter from NHS England and NHS Improvement to all vaccination centres and GPs in the UK has omitted advice that health professionals can and should apply their clinical judgement when placing people in group 6. Vaccination of people with underlying health conditions that put them at risk of
APPGs should collaborate on ME and Long Covid
February 9, 2021
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#MEAction UK has highlighted three specific areas of overlap that could benefit from a collaborative approach by the All Party Parliamentary Groups.
Latest report shows people with ME have been failed by Scottish Government
February 5, 2021
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The Scottish Government has said it must not wait to address the needs of the ME community, but its latest report indicates that this is precisely what it has done and continues to do.
UK press team hits again with Mail Online article
January 15, 2021
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#MEAction UK’s press team was instrumental in getting an excellent article published in the Daily Mail at the beginning of January. The article criticises the blanket advice of GPs to recommend exercise for long COVID patients without taking into consideration those with symptoms of ME, particularly post-exertional malaise.
Moving short film “This is ME” nominated for award – you can help it win!
January 15, 2021
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Moving short film “This is ME” shares more in nine minutes than most people with ME can begin to share in words alone.
NIH Hosts Workshop on Long COVID – Read the Summary
December 30, 2020
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On December 3-4, 2020, the National Institutes of Health (NIH) / National Institute of Allergy and Infectious Diseases (NIAID) hosted a virtual Workshop on Post-Acute Sequelae of COVID-19. We know acute COVID-19 has an extraordinary number of multisystem manifestations: pulmonary, cardiovascular, neurologic, psychiatric, musculoskeletal, endocrine, renal, hepatic, gastrointestinal, and dermatologic. The workshop’s goal was to
#MEAction UK response to draft ME/CFS guideline from NICE
December 21, 2020
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#MEAction UK volunteers have worked to produce a robust and comprehensive response to the draft ME/CFS guideline from NICE.
Scottish Sunday Express Publishes Comment Piece about ME
December 16, 2020
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The Scottish Sunday Express published a Comment piece by Emma Shorter who shared her experience of getting a virus nine years ago and never recovering – as a warning and wake-up call for the government to adequately address long haulers who are not recovering from Covid-19. Read the article. Emma talks about how the practice