On 16th May 2023, the Scottish Government published the findings from an analysis of surveys issued to NHS Health Boards to understand delivery of ME services and implementation of the updated NICE guideline. #MEAction Scotland welcomes the survey activity and report, as it provides useful evidence about the current issues people with ME are facing
This year, #MEAction Scotland’s #MillionsMissing campaign focussed on raising awareness of the reality of living with ME and called for education and training for healthcare professionals to improve support for people with ME across Scotland. Ahead of ME Awareness week, we put out a call, alongside #MEAction UK, to ask members of the ME community
The Scottish Government published the updated Scottish Good Practice Statement (SGPS) on ME-CFS on 28th February 2023. The decision to update the Scottish Good Practice Statement, originally published in 2010, was a result of the Scottish stakeholder review of the 2021 NICE guideline on ME/CFS, and its recommendations for implementing the guideline in Scotland. The
Article summary: Sue Webber MSP’s Member’s Business debate took place in the Scottish Parliament on Thursday 2nd February, 2023. It was a successful debate with a good turnout of MSPs from across all parties, and it had to be extended due to the amount of MSPs who wanted to speak. There were calls on the
Sue Webber MSP’s motion about ME will be debated in the Scottish Parliament on Thursday 2nd February – and your MSPs should be there! The motion calls on the Scottish Parliament to recognise the outcomes and recommendations of the stakeholder report on ME, including education of healthcare professionals and development of specialist services. We’re pleased
#MEAction Scotland’s latest community call took place on Wednesday, 23rd November. People with ME from across Scotland joined four volunteers to catch up on what #MEAction Scotland has been doing since the summer. First up was feedback on a very successful #MillionsMissing event at the end of September. The main focus of that event was
Welcome to the final #FacetsOfME for 2022, where we focus on centering ME during the holidays!
#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.
#MEAction’s Fund Bold Action Campaign DONATE 100% Amount raised $115,545 (£95,120) time until the end of the year 00Days 00Hours 00Minutes 00Seconds Support #MEAction’s Fund Bold Action Campaign. Our goal: US$100,000 (£89,000) by December 31st. Fund the BOLD ACTION that we fight for each day! #MEAction has always believed that BOLD action is required to
At #MillionsMissing Scotland many MSPs pledged their support for people with ME, and now they have a chance to follow up on that commitment. And we need you to let them know about it! Sue Webber, MSP for Lothian, has put forward a motion that asks the Scottish Parliament to recognise the outcomes and recommendations
