The Information Commissioner’s Office (ICO) has ordered Queen Mary University of London to release anonymized PACE trial data to an unnamed complainant. Queen Mary has 28 days to appeal the decision. The report outlines the scope of the data requested, Queen Mary’s arguments for refusing to release the data and the Commissioner’s justification for siding with the patient requesting the
OPINION PACE is valueless for one reason: the combination of lack of blinding of treatments and choice of subjective primary endpoint. Neither of these alone need be a fatal design flaw but the combination is. The only possible mitigation of this flaw would be if: 1. There were no acceptable alternatives to a subjective primary
Use this code to add a PACE petition counter to your blog or website. It links back to the original petition and is a great way satisfy your PACE petition mania from the comfort of wherever on the internet you call home: You’ll need to format the font, colors, etc. to suit your tastes. Here’s what
Given the weak and flawed methodologies of the PACE trial, which claims that CBT and GET led to the recovery of ME/CFS patients, we, the undersigned patients, doctors, scientists, parents, children, family, friends, caretakers and #MEAllies: – call upon The Lancet to retract the claim made in its February 2011 editorial [1] that 30% of
In wake of David Tuller’s investigation, PACE investigators publish follow up study Last week, journalist David Tuller published a four-part investigative piece on the 2011 PACE trial, a £5 million (US$8 million) non-blind study of cognitive behavioral therapy (CBT) and graded exercise (GET) as treatment for chronic fatigue syndrome. In his piece, Tuller quotes top
Journalist and public health expert David Tuller completed yesterday the publication of his highly critical investigation into the UK’s £5 million PACE trial, on the well known Virology Blog (see Parts 1 and 2, Part 3 and Part 4). The PACE trial was a non-blind study of cognitive behaviour therapy (CBT) and graded exercise therapy (GET)
Health scientist and New York Times published journalist David Tuller today launched a damning critique upon the UK’s £5 million PACE trial in an article published on the popular Virology Blog. The PACE trial was an open-label study of graded exercise therapy and cognitive behavioural therapy for chronic fatigue syndrome that used subjective measures as
Quick Overview: Submit one piece of artwork – image, writing, or video Label your artwork with your name as you want it to appear, an underscore, and the number of years with severe ME Example: Lastname_FirstName_14 FirstNameOnly_ No copyrighted material If you are submitting a video, it must be under two minutes. Submission due by
Please join us for our monthly #MEAction NC support call, every 2nd Thursday of the month at 1 PM Eastern. All people with ME/CFS or Long Covid and their caregivers or family are welcome! The purpose of this call is to offer support and community to people dealing with ME/CFS. This is a space to connect with
Please join us for our monthly #MEAction NC support call, every 2nd Thursday of the month at 1 PM Eastern. All people with ME/CFS or Long Covid and their caregivers or family are welcome! The purpose of this call is to offer support and community to people dealing with ME/CFS. This is a space to connect with
