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Complain about NIH's Claims on CBT and GET

November 30, 2015 12 Comments

Medline Plus, NIH’s web site for patients, just published an article from health news distributor Healthday, based on the recent, discredited U.K. PACE study. The new article states that “cognitive behavioral therapy and graded exercise therapy are among the best available treatments for extended relief” of ME/CFS. Fortunately, if you want to file a complaint about this article, it’s super easy.

Help Simmaron Fund the Rise of ME/CFS Research!

November 29, 2015 1 Comment

Simmaron Powers Change in 2015! 2015 marks a powerful turning point for ME/CFS patients, and it’s all happening because of you! Patients, advocates and researchers have worked tirelessly to elevate our disease at the U.S. National Institutes of Health. On October 29, Dr. Francis Collins, Director of NIH, announced promising changes to the federal research

Aust Senator questions government on lack of action on ME

November 16, 2015 2 Comments

Australia’s Senator Ludlam asks Department of Health what they do for people with ME.

Take this preliminary survey on treatment benefits and harms

November 12, 2015 7 Comments

I have been looking at this tantalizing survey by the Autism Research Institute for a few years now. It aggregates 27,000 parents’ reports on the effects of pharmaceutical and alternative interventions on autistic children. It’s not a clinical trial or a substitute for doctors’ advice. It uses subjective, self-reported measures (which we all know are problematic). It’s

Join Team Solve – Fundraising for ME/CFS Research

September 3, 2015 No Comments

It will take more than people with ME/CFS to achieve a world free of ME/CFS. It will take a committed team of many rallying together to effect change – Families, loved ones and friends coming together to make a difference and fund progress. Join Team Solve and help us Solve ME/CFS!

Lessons from the AIDS Movement: Peter Staley interview transcripts

July 26, 2015 1 Comment

Peter Staley: Full interview + transcript The following is the video + transcript for the full, 70 minute interview with AIDS activist Peter Staley. You can also browse short, 2-3 minute videos. JEN: Hello and thank you for joining us for this episode of Thrive Show. I am so, so thrilled to welcome today Peter Staley