Urge your MP to sign EDM 271!
September 9, 2017
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We need your help for parliament to recognise the strength of feeling about NICE guideline review
Search Results for: exercise – Page 24
FITNET trial criticised in Behavioural Sciences journal
August 18, 2017
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Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial
THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL
July 30, 2017
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Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22, No 9, Aug. 2017 Publication date: 31 July 2017 http://journals.sagepub.com/toc/hpqa/current A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017. It marks a special contribution of
NICE 2017 response
July 23, 2017
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10 year surveillance (2017) – Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) (2007) NICE guideline CG53 Stakeholder consultation comments form – proposal for ‘no update’ Consultation on the proposal for ‘no update’ opens on: 9am Monday, 10 July 2017 Comments on proposal to be submitted: no later than 9am Monday, 24 July 2017 Organisation name
Troubled by NICE guidelines? Three easy ways you can help
July 12, 2017
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When you go to the doctor, you expect treatment to help, not harm you. But the NICE (NHS) guidelines for ME/CFS only recommend two main therapies for ME: Graded Exercise Therapy (GET – which asks you to gradually increase your exercise each week, ignoring any worsening symptoms) and Cognitive Behavioural Therapy (CBT). The majority of
Write to Your MP in 5 Minutes about the ME/CFS NICE Guidelines
July 12, 2017
7 Comments
The NHS’ NICE guidelines are badly out of date, and only offer two main treatments: Graded Exercise Therapy and Cognitive Behavioural Therapy. We’ve just heard that NICE, despite being due for a revision this year, are intending not to revise the guidelines after all. This is worrying for all patients who have been harmed
Tuller on PACE Investigation Plans: Not Beholden to Anyone
June 8, 2017
5 Comments
#MEAction sat down with David Tuller recently for a wide-ranging discussion about the crowdfunding effort to help him continue his PACE investigations, the devastating stories he has heard from patients around the world, the poor media coverage of the PACE Trial flaws, and the ideal end result of all of the work he is doing. David Tuller
New York State Health Commissioner Sends Letter to Physicians about ME
May 29, 2017
2 Comments
On Friday, May 26th, New York State (NYS) Health Commissioner Dr. Howard Zucker emailed a letter regarding Myalgic Encephalomyelitis (ME) to eighty-five thousand physicians in NYS. In the letter he describes the illness, encourages physicians to consider ME as part of a differential diagnosis when evaluating patients with symptoms, and refers readers to Jen Brea’s
Australian government seeking expert advice on ME and CFS research grants
March 29, 2017
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Australian Senator Scott Ludlam asked about the progress of proposals to research ME and CFS and what can be done to educate GPs to prevent harmful treatments.
Australia University will Study Effects of Xbox on Physical Activity in ME/CFS Patients
March 26, 2017
4 Comments
The University of South Australia will begin a research study that looks at how active video gaming can increase physical activity in adults with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis.
The study has no set research criteria, despite studies that show 2 out of 5 patients are misdiagnosed with CFS/ME in Australia.