#MEACTION USA FEDERAL AGENCIES We are fighting for research, recognition and medical education from the NIH and CDC. We must hold the National Institutes of Health (NIH) and Center for Disease Control and Prevention (CDC) accountable for addressing the crisis of myalgic encephalomyelitis, which affects more than 1 million Americans. The NIH has long failed
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Healthcare Providers Diagnosing and caring for patients Myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS) is a complex chronic disease that presents with symptoms in multiple body systems. ME is a neurological disease according to the World Health Organization. For decades, “chronic fatigue syndrome” was a diagnosis of exclusion, resulting in the
Caregivers Caring for people with ME and caring for yourself, too. How does ME impact caregivers? Myalgic encephalomyelitis is a complex, challenging disease for everyone involved – not least the caregiver or carer. Caring for someone with ME requires adaptibility, patience, commitment and compassion. We hope the resources below will help you better navigate the
People with ME * Long haulers experiencing symptoms of ME/CFS, start with this page. DIAGNOSIS & DOCTORS Myalgic encephalomyelitis (also known as chronic fatigue syndrome or ME/CFS) is a complex chronic disease that presents with symptoms in multiple body systems. ME is a neurological disease according to the World Health Organization. ME is characterized
Researchers, patients and clinicians are invited to submit a manuscript for consideration in a special issue of WORK: A Journal of Prevention, Assessment and Rehabilitation (IOS Press), which will focus exclusively on the area of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Submissions are due Sept. 13, 2019. Scope The focus of this special edition is to examine how
#MEAction is honored to announce our volunteers-of-the-month, Innie and Pyrrhus, who are extremely dedicated contributors to MEpedia, our wiki encyclopedia for the ME and CFS community. Powered by #MEAction, MEpedia is crowdsourcing a knowledge base on the history, science and medicine with the goal to create a literature review so accurate, comprehensive, and technical that it can serve as a
Listen to the article: Part 1: Part 2: In the past two weeks, The Guardian/The Observer and Psychology Today US have published articles portraying the myalgic encephalomyelitis (ME) community as an angry, misguided mob using social media to denigrate scientific research. Both articles focus on the criticism that Dr. Michael Sharpe, one of the
Volunteers are at the heart of everything #MEAction Scotland does. We are always looking for more people to help make a difference and support our work in Scotland. Currently, #MEAction Scotland is run by a small group of volunteers, most of whom have ME, with support from the UK coordinator. If you are interested in
As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose: to be part of igniting the fire for change in the world. While it took me a while to determine that purpose, this truth has always been a driving force in my life. From a young
